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I worked in mental health. I worked with kids and I was in and out of schools and houses. I had them in my car, etc. Although it was a rewarding experience ( I did it for almost 2 years) it eventually drove me nuts. The stress of working 60 hours a week, in a health setting, with kids....ugh. I...

Hi Paula, You do need to be careful for the sake of your daughter, and it's good you are concerned with this. I have pseudmonas (I have no idea how to spell that) I don't know when I first cultured that because I wasn't diagnosed until 10 years old. However, I have a niece who has CF and we...

Thanks for your advice. I have been checking this site daily to check responses and I truly appreciate you taking time to let me know how you are. I usually do clot quickly 15-30mins. And then I'll prop myself up so I can get to sleep. It used to be scary now I'm used to it. But I'm a little...

Hey, I was diagnosed when I was 10 and I kept is a secret until I was in high school. I was embarrassed and didn't want to be treated differently. I was afraid my classmates would think I was going to get them sick or something. I now am very open and honest and it has been a blessing. There...

One theory I heard (don't know if it's true), is that there was a plague, affecting the stomach like a very serious flu, and people with CF since they have a thicker mucous lining were able to tollerate it and thus passed on the gene, making CF more common in a certain race. Once again, don't...

Renee, I don't know if you are still checking this considering the way you were treated and I think who ever wrote that was rude. So I'm sorry that you were treated that way because I know that people who have, or have to deal with CF need a lot of support. Regarding your question. If your...

I have a hot tub on my back deck and my husband and I use it several times a month. I already have pseud. HOWEVER my niece who also has CF (she's 5) gets in there too (she does not have pseud.) I wonder if we should not be doing this. I will have to check it out with my dr. Thanks for raising...

It's encouraging to see everything going up. Good job on taking care of yourself. Kelli