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My daughter (24 y/o, double delta F508) is currently taking polymyxin b. Yes, she is down to the last of the antibiotics that may help her. Has anyone else taken this drug and what was your experience with it? She is experiencing tingling in her fingertips and some numbness in her tongue and...

Hi Jillybeans, My 23 y/o daughter just got a feeding tube. Like others, we fought the idea of doing this for several years. She is now looking at a transplant in the near future, and was not able to eat enough to gain the weight necessary to be evaluated. Like tharris, we waited till she...