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  1. K

    the recalls we never learn about!

    The L.A. Times has been running a series of articles about this problem that was brought to light when several people died from infections that were spread by the endoscopes at UCLA hospital. Further investigation showed that this was not an isolated event, it showed up at several facilities...
  2. K

    VibraLung Review

    My daughter has been using it with the vest in the same time. She is also on Orkambi, and she seems to be doing better, having more energy than before. Our next clinic visit will be at the end of October, hopefully her numbers will show improvement. I definitely recommend the Vibralung, I...
  3. K

    For people taking Orkambi

    My 25 yr old daughter has been on it for six weeks now. The initial chest tightness went away after about a week. From time to time she has a little bit of nausea - remember you need to take Orkambi with fat and some people need more fat intake than just a glass of full milk- however it is not...
  4. K

    Which air compressor do you use in the United States? Travelling there- need help!

    Is your compressor dual voltage, 220V/110V? Dual voltage appliances need only adapter plugs that you can buy at any bigger Boots, Argos, or even at the airport in the UK. You have two options if you need to buy a new compressor. Option one; buy a Pari battery and AC operated compressor...
  5. K

    Parents of ADULTS with CF

    You are really lucky living in the Bay Area. CFRI (CFRI.org) located in Mt. View has regular support group meetings. Coming up on the weekend of April 17th is the first "mothers' day retreat" in Menlo Park. Hopefully I will see you there, as I am coming up from Los Angeles. My daughter is...
  6. K

    Wisdom teeth extraction

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