Search results

  1. J

    NEW LUNGS!

    I got new lungs the day before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's so good to be able to breathe! Congrats <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. J

    NEW LUNGS!

    I got new lungs the day before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's so good to be able to breathe! Congrats <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. J

    NEW LUNGS!

    I got new lungs the day before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's so good to be able to breathe! Congrats <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. J

    Needs advice on how to up my appatite...

    i had pretty good luck with marinol, which was mentioned above. Another one to try is periactin. It's an anti-histimine but is often prescribed for appetite boosts. It worked really well for me, but made me SOOOO tired I would just sleep and eat and sleep. Sorry to say it, but the only...
  5. J

    Needs advice on how to up my appatite...

    i had pretty good luck with marinol, which was mentioned above. Another one to try is periactin. It's an anti-histimine but is often prescribed for appetite boosts. It worked really well for me, but made me SOOOO tired I would just sleep and eat and sleep. Sorry to say it, but the only...
  6. J

    Needs advice on how to up my appatite...

    i had pretty good luck with marinol, which was mentioned above. Another one to try is periactin. It's an anti-histimine but is often prescribed for appetite boosts. It worked really well for me, but made me SOOOO tired I would just sleep and eat and sleep. Sorry to say it, but the only...
  7. J

    Well Im Out Of Hospital

    That happened to me once, and it turned out to be the wrong antibiotics. Turns out I had a slow-growing gram-positive AFB that they didn't originally find because they didn't let the culture grow out long enough. Found it a few months later when I REALLY went downhill... took another 8 weeks...
  8. J

    Well Im Out Of Hospital

    That happened to me once, and it turned out to be the wrong antibiotics. Turns out I had a slow-growing gram-positive AFB that they didn't originally find because they didn't let the culture grow out long enough. Found it a few months later when I REALLY went downhill... took another 8 weeks...
  9. J

    Well Im Out Of Hospital

    That happened to me once, and it turned out to be the wrong antibiotics. Turns out I had a slow-growing gram-positive AFB that they didn't originally find because they didn't let the culture grow out long enough. Found it a few months later when I REALLY went downhill... took another 8 weeks...
  10. J

    opiates

    pre-transplant, i was taking oxycodone in contrast to what one of my transplant teams was telling me. my CF doctor finally agreed that I was at the point in my disease progression that it was only 'end-stage care' and that my comfort was the most important thing she could do for me. Yes, the...
  11. J

    opiates

    pre-transplant, i was taking oxycodone in contrast to what one of my transplant teams was telling me. my CF doctor finally agreed that I was at the point in my disease progression that it was only 'end-stage care' and that my comfort was the most important thing she could do for me. Yes, the...
  12. J

    opiates

    pre-transplant, i was taking oxycodone in contrast to what one of my transplant teams was telling me. my CF doctor finally agreed that I was at the point in my disease progression that it was only 'end-stage care' and that my comfort was the most important thing she could do for me. Yes, the...
  13. J

    Transplant Pics

    thanks for the pictures! i had my tx on 9/8, a month before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wish i had had my camera on me when they called, i didn't get any photos. enjoy breathing! i know i am <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. J

    Transplant Pics

    thanks for the pictures! i had my tx on 9/8, a month before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wish i had had my camera on me when they called, i didn't get any photos. enjoy breathing! i know i am <img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. J

    Transplant Pics

    thanks for the pictures! i had my tx on 9/8, a month before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wish i had had my camera on me when they called, i didn't get any photos. enjoy breathing! i know i am <img src="i/expressions/face-icon-small-smile.gif" border="0">
  16. J

    Brevundimonas diminuta

    i have cultured steno malt for a while and they actually did mention brevundimonas at one point, but from everything that has since transpired, that one didn't have any resistances to the things we were using against my mycobacterium and the steno and pseudo. i'm sorry i can't really give any...
  17. J

    Brevundimonas diminuta

    i have cultured steno malt for a while and they actually did mention brevundimonas at one point, but from everything that has since transpired, that one didn't have any resistances to the things we were using against my mycobacterium and the steno and pseudo. i'm sorry i can't really give any...
  18. J

    Brevundimonas diminuta

    i have cultured steno malt for a while and they actually did mention brevundimonas at one point, but from everything that has since transpired, that one didn't have any resistances to the things we were using against my mycobacterium and the steno and pseudo. i'm sorry i can't really give any...
  19. J

    Pain Issues Pre-Transplant

    i had bipap set up for me when i was in the hospital. the RTs did it and figured out the correct settings and then the case manager put in the order with my homecare people. it saved me the sleep study. next time you go in, see if you can work that out. it's so much easier! I would ask dr d...
  20. J

    Pain Issues Pre-Transplant

    i had bipap set up for me when i was in the hospital. the RTs did it and figured out the correct settings and then the case manager put in the order with my homecare people. it saved me the sleep study. next time you go in, see if you can work that out. it's so much easier! I would ask dr d...
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