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  1. K

    Deletions and duplications

    Wow reading your story I understand how you feel. My daughter who is now four was diagnosed in what he called (this is the doc now) in his opinion she has Atypical CF. Why? Just like you no supporting testing. They have been unable to find any mutations, GI is fine, One postv. sweat test at 66...
  2. K

    Deletions and duplications

    Wow reading your story I understand how you feel. My daughter who is now four was diagnosed in what he called (this is the doc now) in his opinion she has Atypical CF. Why? Just like you no supporting testing. They have been unable to find any mutations, GI is fine, One postv. sweat test at 66...
  3. K

    Deletions and duplications

    Wow reading your story I understand how you feel. My daughter who is now four was diagnosed in what he called (this is the doc now) in his opinion she has Atypical CF. Why? Just like you no supporting testing. They have been unable to find any mutations, GI is fine, One postv. sweat test at 66...
  4. K

    Deletions and duplications

    Wow reading your story I understand how you feel. My daughter who is now four was diagnosed in what he called (this is the doc now) in his opinion she has Atypical CF. Why? Just like you no supporting testing. They have been unable to find any mutations, GI is fine, One postv. sweat test at 66...
  5. K

    Deletions and duplications

    Wow reading your story I understand how you feel. My daughter who is now four was diagnosed in what he called (this is the doc now) in his opinion she has Atypical CF. Why? Just like you no supporting testing. They have been unable to find any mutations, GI is fine, One postv. sweat test at 66...
  6. K

    Newly Diagnosed ?

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  7. K

    Newly Diagnosed ?

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  8. K

    Newly Diagnosed ?

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  9. K

    Newly Diagnosed ?

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  10. K

    Newly Diagnosed ?

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  11. K

    Newly Diagnosed ?

    Thank you for everyones response and feed back. I'm trying to have a differant outlook and to calm myself down with things. To enjoy life more and stop racking my brain and driving myself crazy trying to figure out more answers on my own. We have been going every three months for are check ups...
  12. K

    Newly Diagnosed ?

    Thank you for everyones response and feed back. I'm trying to have a differant outlook and to calm myself down with things. To enjoy life more and stop racking my brain and driving myself crazy trying to figure out more answers on my own. We have been going every three months for are check ups...
  13. K

    Newly Diagnosed ?

    Thank you for everyones response and feed back. I'm trying to have a differant outlook and to calm myself down with things. To enjoy life more and stop racking my brain and driving myself crazy trying to figure out more answers on my own. We have been going every three months for are check ups...
  14. K

    Newly Diagnosed ?

    Thank you for everyones response and feed back. I'm trying to have a differant outlook and to calm myself down with things. To enjoy life more and stop racking my brain and driving myself crazy trying to figure out more answers on my own. We have been going every three months for are check ups...
  15. K

    Newly Diagnosed ?

    Thank you for everyones response and feed back. I'm trying to have a differant outlook and to calm myself down with things. To enjoy life more and stop racking my brain and driving myself crazy trying to figure out more answers on my own. We have been going every three months for are check ups...
  16. K

    Newly Diagnosed ?

    Thank you for replying. That is my biggest prob. I think not understanding everything. From what the doc. told me in her case you can't follow text book rules on CF with her. She falls in that 2% of what John Hopkins call non-classic or atypical. But on the other hand she needs to be watched and...
  17. K

    Newly Diagnosed ?

    Thank you for replying. That is my biggest prob. I think not understanding everything. From what the doc. told me in her case you can't follow text book rules on CF with her. She falls in that 2% of what John Hopkins call non-classic or atypical. But on the other hand she needs to be watched and...
  18. K

    Newly Diagnosed ?

    Thank you for replying. That is my biggest prob. I think not understanding everything. From what the doc. told me in her case you can't follow text book rules on CF with her. She falls in that 2% of what John Hopkins call non-classic or atypical. But on the other hand she needs to be watched and...
  19. K

    Newly Diagnosed ?

    Thank you for replying. That is my biggest prob. I think not understanding everything. From what the doc. told me in her case you can't follow text book rules on CF with her. She falls in that 2% of what John Hopkins call non-classic or atypical. But on the other hand she needs to be watched and...
  20. K

    Newly Diagnosed ?

    Thank you for replying. That is my biggest prob. I think not understanding everything. From what the doc. told me in her case you can't follow text book rules on CF with her. She falls in that 2% of what John Hopkins call non-classic or atypical. But on the other hand she needs to be watched and...
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