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HEY GUYS!, Thank you all for the advice. i will discuss these options with my doctor on thursday. they want to admit me in the hospital rather than let me do home IVs. I think that is their way of not knowing what else to do, but who knows it may make a big difference... also my pfts/FEV1 was 81...

Bless your heart..maybe someone will have some good advice for us :) the last 2 1/2 years have been the worst for me too, been on more IVs the last couple years than any other time of my life. But this year has taken the cake by far! Prayers for you!

HEY GUYS! ok so im not sure what needs to happen at this point, or if there are any options left. i hvae been on 10 rounds of iv antibiotics already this year. that is averaging once a month!!! i have a port so it isnt as troublesome to start IVs when needed, but is this my new way of life??? i...

Oh I sooo feel for you! Us "cf-ers" know that misery! I just wanted to say that I am praying for you, and I do agree the sooner you let the docs know the sooner a treatment plan can be done.. Hugs!! Feel better!!

Oh I sooo feel for you! Us "cf-ers" know that misery! I just wanted to say that I am praying for you, and I do agree the sooner you let the docs know the sooner a treatment plan can be done.. Hugs!! Feel better!!

hello there! so my cultures recently have been resistant to tobramycin as well. i asked why i was still put on tobramycin iv after seein that i was not sensitive to it, and my nurse told me that they cant assumes that all my bugs are not sensitive. And that because my cultures were sinsitive...

hello there! so my cultures recently have been resistant to tobramycin as well. i asked why i was still put on tobramycin iv after seein that i was not sensitive to it, and my nurse told me that they cant assumes that all my bugs are not sensitive. And that because my cultures were sinsitive...

<span class="ftcolumntext"><span class="ftcolumntext"> hi jackie!! so this message was originally in response to your private message to me, but since i saw your post i thought perhaps my private messagedidnt go through back to you. plus i thought this info would help other hemoptysis suffers...

<span class="ftcolumntext"><span class="ftcolumntext"> hi jackie!! so this message was originally in response to your private message to me, but since i saw your post i thought perhaps my private messagedidnt go through back to you. plus i thought this info would help other hemoptysis suffers...

how do you know if you have a gating mutation? i have one that is DF508 and my other is 1898+1G->A so is it a gating mutation if it has a "G". does anyone know how to ditinguish that?

how do you know if you have a gating mutation? i have one that is DF508 and my other is 1898+1G->A so is it a gating mutation if it has a "G". does anyone know how to ditinguish that?

The song, "WONDER", by Natalie Merchant (my mom dedicated this to me when i was yonger, and my mom and i danced to this at my wedding..) Doctors have come from distant citiesJust to see meStand over my bedDisbelieving what they're seeing They say I must be one of the wondersOf God's own...

<P>to <A href="http://www.cysticfibrosis.com/profile/index.cfm/Incomudrox"><U><FONT color=#666666>Incomudrox</FONT></U></A>'s first reply, </P> <P>that is what this site is for, right? asking questions... <img src="i/expressions/face-icon-small-smile.gif" border="0"> afterall, us "c.f.-ers"  are...

<P>to <A href="http://www.cysticfibrosis.com/profile/index.cfm/Incomudrox"><U><FONT color=#666666>Incomudrox</FONT></U></A>'sfirst reply, </P> <P>that is what this site is for, right? asking questions... <img src="i/expressions/face-icon-small-smile.gif" border="0"> afterall, us "c.f.-ers" are...

<P><BR>to <A href="http://www.cysticfibrosis.com/profile/index.cfm/Incomudrox"><U><FONT color=#666666>Incomudrox</FONT></U></A>'sfirst reply, </P> <P>that is what this site is for, right? asking questions... <img src="i/expressions/face-icon-small-smile.gif" border="0"> afterall, us "c.f.-ers"...

thank you for all of your replies! i used to have bad broncho spasms while using  tobi, so this go around when i grew the psuedomonus, i wanted to use all of my options including tobi, but i thought by doing only once daily it would cut down on the broncho spasm side effects, but then i started...

thank you for all of your replies! i used to have bad broncho spasmswhile using tobi, so this go around when i grew the psuedomonus, i wanted to use all of my options including tobi, but i thought by doing only once dailyit would cut down on the broncho spasm side effects, but then i started...

<BR>thank you for all of your replies! i used to have bad broncho spasmswhile using tobi, so this go around when i grew the psuedomonus, i wanted to use all of my options including tobi, but i thought by doing only once dailyit would cut down on the broncho spasm side effects, but then i started...

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