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I don't know which one is the best in the area, but I am on the list at USC too. I've been on it for 3 months now :) I went to the support group meeting last night (I highly recommend it for both him and you, no matter what stage of the process he is in) and some of the other people there said...

I just attempted to do my first dose of Colistin. I received my order from Foundation Care and assumed they sent me everything I needed. Admittedly, I didn't pay too much attention to what I was doing because it seemed pretty self-explanatory. I figured it was similar to the old days of...

I don't get them from 3/week zithro. I am very prone to them when I go on IV antibiotics, but the zithromax doesn't affect me.

How is Kalydeco administered? Is it an inhaler, a nebulizer aerosol, or a pill??

I also get it from Foundation Care for free whenever I refill my Cayston. If I order it from them when I don't need Cayston refilled I pay $5 for it.

I'd like to hear from anyone who has used an at-home spirometer. Are they pretty accurate? I'm looking specifically at this one (http://www.medrise.com/spirometer/piko-6-electronic-fev1-fev6-meter.html#.USpIpVcsAXY) because I don't want to spend thousands of dollars. I've started exercising...

Doing the vest can get very itchy! I think it's got something to do with the vibration on your skin. Even my thighs start to itch where the bottom of the vests rests on them while I'm sitting. I've found that wearing a long sleeve, thick hoodie creates a good barrier between the vest and...

Thank you both for your responses. I feel so much better now seeing that you both concurred with all of my concerns. I have the POS now, but have only used the HMO side, and I have paid very little out of pocket as far as medical expenses, but I paid about $1300 in Rx last year and it's only...

My employer is currently in open enrollment for new insurance. My options are Anthem Blue Cross HMO, PPO, and PPO/HSA. I am looking at the PPO/HSA, but it almost sounds too good to be true for me and I'd like to hear from anyone who uses the HSA to see if there are any hidden costs or fine...

I went through this same scenario about a year ago. I spent an agonizing week worrying about HPV, because the doctor was convinced that's what it was. He did some painful test down there, and after all was said and done it turned out not to be HPV, and he never really gave me an explanation...

Your son should absolutely go for his dreams! I am not an officer, but I work in Evidence for a local PD. I had a difficult time passing the medical, and actually didn't reach the 75% lung function requirement to get hired. I was completely honest about my health from the start. The lady...

Thank you all for your replies and experiences. It's great to hear opinions from people who are actually going through this. I have so many people in my life that are very "Team Transplant", and every time I try to voice my concerns and reasons for hesitation they make me feel like I'm just...

I think you hit the nail on the head. THERE IS STILL SO MUCH THAT I AM ABLE TO DO! I know that I am blessed to still be able to do so much, and maybe I feel a little guilty for even considering transplant when there are MUCH sicker people out there than me. But, then again, I am also stubborn...

Thanks for your reply Mark. You bring up a question I have often wondered. While I don't think that the meds themselves will reverse lung damage, I wonder if over time, since they supposedly "stop" the progression of the disease, will the lungs start to regenerate? When people stop smoking...

And so it begins.... I have my first appointment to start the evaluation process in about a month. Up until this point, I have always known that transplant was something I would definitely want if the time came. I am now starting to wonder if in fact it is something I want. I feel like I am...

I've also passed several stones. Most of them on my own, but two had to be broken up by laser lithotripsy . Is that the type of surgery you're talking about? It was one of the easiest procedures I've ever had done. I was already admitted to the hospital for a cf exacerbation when I had it...

Getting the pump is one of the best decisions I have ever made!

Getting the pump is one of the best decisions I have ever made!

Kyla, a leg garter works great to clip the pump on when you are wearing a dress. It doesn't work so well if the dress is tight fitting, since the ruffles of the garter will show through, but if it's a flowy dress you can't see it at all. Also, I've just taped the pump to my inner thigh. I use...

Kyla, a leg garter works great to clip the pump on when you are wearing a dress. It doesn't work so well if the dress is tight fitting, since the ruffles of the garter will show through, but if it's a flowy dress you can't see it at all. Also, I've just taped the pump to my inner thigh. I use...