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  1. C

    G-tube

    When they told me that my daughter was going to need a g button, I was very against it. She was only three, and I hated the idea of it, but the truth is, it has been very beneficial to her over-all health. It's a source of calories at night or even during the day if she has no appetite. Not to...
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    Kalydeco non G551D users

    Yeah. It's the DDF508. It's nice to meet you too. :) Hopefully someone will answer though.
  3. C

    Kalydeco non G551D users

    No, I haven't really posted here. I just read. I read most of your updates, it just seemed rude to not ask how your daughter is. Lol My daughter also goes to Texas Childrens. We haven't tried Kaly yet, but my daughter also has DF 508 and if you are seeing positive results, then we might ask...
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    Kalydeco non G551D users

    Hey, I was interested in this as well. How is Abby doing with Kalydeco? Amazing how similar our situation is. Lol
  5. C

    Anyone remember me?

    I can't tell you how to handle it, but I can tell you how I do. I consider my daughter a gift. A blessing to me and my family. I feel like I am lucky to have her as a part of my life for as long as she is a part of my life. I also have faith that new treatments are coming out. People are living...
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