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I found out yesterday that my daughter has no mutations. I am still not sure what is up with her as she is still getting sinus infections. I want to say thanks to everyone here. I have learned much over the last months. I will check in from time to time, as I feel I have gotten to know you...

So last night I recieved a call from our CF nurse. I of course didn't answer the call so I waited nervously until the morning. I was told that there were no mutations found and something about 7T/7T poly something? When I asked if duplication and deletions were done I was told they were and...

After finding out that our hospital sent my dd's blood work to the wrong lab, I wrote a letter outlining my disappointment with the mistake and have made a new "friend" who has helped me to ensure this mistake will not happen again. So, since we were at the hospital for a study she is...

I am so angry tonight. I took my dd to have her blood drawn 2 weeks ago and found out today that the sample was sent for the wrong testing. It was supposed to go to ambry, but went instead to genzyme and was tested for same 97 mutation she was tested for a year ago. We have had to fight...

I finally talked to my insurance company(for the 2 millionth time)and the CF nurse and everyone assured me they have every possible piece of information they could possibly need, so we finally sent my daughters blood off to Ambry today. So now we wait.... and wait. I am happy that we are at...

I am not sure if you should try this at home, but it is pretty funny.... <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=V94shlqPlSI">http://www.youtube.com/watch?v=V94shlqPlSI</a>

My eight year old is constantly complaining of her stomach hurting. This is nothing new- has been going on for years. I took her to the doc last month and they decided to run a sweat chloride test just because my older dd is waiting to have the ambry test run. It came back high normal. So I...

In March I took my dd to the CF clinic to seek their opinion about her frequent sinus infections, sweat chloride of 38 and other odd symptoms she has had. I had a good experience, they took me seriously and we made a plan for having her bronched (results good) doing a few other tests and...

Hi there! I have been hanging around this site for a while, wondering if I should post or not and after a few sleepless nights I decided to return. My daughter (10) has had a long hx of asthma and ear infections. 3 years ago we had her tonsils and adneiods removed due to frequent...