Search results

  1. J

    Needs advice on how to up my appatite...

    There are 2 ways that I know how to up my appatite...one is to get high with mary jean and eat everything in sight...the other was to take megas...a female teenage hormone that is only avaliable thru a perscription...I was wanting to know if there is a THC (the active ingredant in weed) pill...
  2. J

    Anyone know of cf'ers that have had heart attacks or "silent heart attacks"

    The docs believe that I had a "silent heart attack" if fits with the pains, and the discomfort that I have been having...not a fun thing and if you can avoid it do...I don't understand why though I am in shape, I eat exceptionally well...no junk food, no chips (well maybe 5 bags a year...the...
  3. J

    Hey everyone who knows me or wants to know me

    ok so I have to say that this winter F***ing sucks!!! So what can I do to help not get sick...I don't go anywhere unless I have to...I can't keep getting sick every other month...I don't like playing my video games alone that much!!! I soooo want to go home see my son, We have had crappy...
  4. J

    GREAT NEWS

    Well a small bit of news that to me is awesome...I'M HOME... after a 3 week stay in the hospital on zocyn, vanco, and then levoquin, hopefully beat the 'pneumonia' I have to say that this is the first time home in 3 weeks and being here is awesome news but I realize that I have 2 new bacteria...
  5. J

    update on Josh....by Josh

    So the last week has been rather interesting, I've delt with some great nurses, a good doctor, and some rather...well lets just be nice and say....some not so great nurses, and some underqualified resp. people in their positions. Can anyone believe I had to explain the differences between a reg...
  6. J

    here we go again...

    So Josh is back in the hospital for iv antibiotics. He is hoping to only be in for 2 weeks but we r seeing how it goes. Just wanted to let everyone know. This winter has been so tough on him, I so hope next year is better. Hope everyone has a great NEW YEARS.
  7. J

    HEY EVERYONE

    To My CF Family, OK so we found out that I didnit have pancreatitis but I did have a very large and high up in my digestive track. Just wanted to let you all know that I was discharged with the blockage still in place...the hospital wouldn't do surgery because...well I honestly don't...
  8. J

    To my Fibro's and Cysters with CF Related Diabetes

    1] How long did it take before you started to see the normal blood sugars Such as mid ninties I still haven't seen an endo yet but with just taking the lantis and not being on any steroids I haven't seen anything that is above 200 and that's only within say an half hour or so of eating... My...
  9. J

    Burkholderia Cepacia...

    I have heard there are 3 types of this diagnosis...how do I find out what the 3 are and who knows anything about the progression of the 3 diffrent strains and how do I find out which one I have....When and where is the information so I can learn and research it for myself the last time I made a...
  10. J

    CF Pharmacy

    I use the cf pharmacy exclusivly now because most insurance's won't cover xoponex from a regular pharmacy but for some reason the cf pharmacy can get all my meds charge me nothing and ship them to me over night every time...the only thing that I go to rite aid is for my pain medicine...fentanyl...
  11. J

    I AM HOME and with a question

    So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting...
  12. J

    Tune up time...a little worse than regular

    So I am in and it sucks...they enacted this new "rule" that no children under the age of 17 are allowed...NOT COOL...I have a 1 year old...Zander he just turned 1 and I missed trick or treating with him and not about to not be able to see him for 2 or 3 weeks that's gonna kill me and him..he has...
Top