Search results

  1. K

    My teeth are gross...

    Sometimes people can get thrush after being on a lot of antibiotics, especially when using inhalers as well. It might be worth having your doctor see if this is what's causing the white coating on your tongue. Just a thought... Also, warm water rinses with baking soda and salt could help. I...
  2. K

    My teeth are gross...

    Sometimes people can get thrush after being on a lot of antibiotics, especially when using inhalers as well. It might be worth having your doctor see if this is what's causing the white coating on your tongue. Just a thought... Also, warm water rinses with baking soda and salt could help. I...
  3. K

    Gastroparesis

    I've suffered with gastroparesis in the past, and I still have symptoms but they are far more manageable. I take Miralax, 17g 1-2x a day. My GI doc also recommended peppermint oil supplements and Align. Surprisingly, these seem to help. When my condition was more severe, the only thing that...
  4. K

    Gastroparesis

    I've suffered with gastroparesis in the past, and I still have symptoms but they are far more manageable. I take Miralax, 17g 1-2x a day. My GI doc also recommended peppermint oil supplements and Align. Surprisingly, these seem to help. When my condition was more severe, the only thing that...
  5. K

    Gastroparesis

    I've suffered with gastroparesis in the past, and I still have symptoms but they are far more manageable. I take Miralax, 17g 1-2x a day. My GI doc also recommended peppermint oil supplements and Align. Surprisingly, these seem to help. When my condition was more severe, the only thing that...
  6. K

    Fundraising

    <P>I've been going to an adult CF clinic for about 8 years now, and in that time I've seen great improvements in the care that I receive and this is due to CFF, which mandated many changes.  Now, instead of just meeting with a CF doc, CFF requires that all patients also see a nutritionist, a...
  7. K

    Fundraising

    <P>I've been going to an adult CF clinic for about 8 years now, and in that time I've seen great improvements in the care that I receive and this is due to CFF, which mandated many changes. Now, instead of just meeting with a CF doc, CFF requires that all patients also see a nutritionist, a...
  8. K

    Fundraising

    <P><BR>I've been going to an adult CF clinic for about 8 years now, and in that time I've seen great improvements in the care that I receive and this is due to CFF, which mandated many changes. Now, instead of just meeting with a CF doc, CFF requires that all patients also see a nutritionist, a...
  9. K

    How were you tested for pancreatic insufficiency?

    <P>I saw someone say (if I understood correctly) that they were conclusive for PI with a stool elastase of 400.  I've been told that I'm pancreatic sufficient with elastase levels fluctuating between 250-290.  Is this accurate in everyone else's experience? It's confusing...</P> <P> </P>...
  10. K

    How were you tested for pancreatic insufficiency?

    <P>I saw someone say (if I understood correctly) that they were conclusive for PI with a stool elastase of 400. I've been told that I'm pancreatic sufficient with elastase levels fluctuating between 250-290. Is this accurate in everyone else's experience? It's confusing...</P> <P></P>...
  11. K

    How were you tested for pancreatic insufficiency?

    <P>I saw someone say (if I understood correctly) that they were conclusive for PI with a stool elastase of 400. I've been told that I'm pancreatic sufficient with elastase levels fluctuating between 250-290. Is this accurate in everyone else's experience? It's confusing...</P> <P></P>...
  12. K

    Welcome Ambry Genetics

    Thanks for getting back to me. Even though you don't have any more information on my specific genotype, do you know how common it is to inherit two mutations on the same gene? Has this been confirmed with other cases, and were these individuals considered to have CF or to simply be carriers...
  13. K

    Welcome Ambry Genetics

    I was wondering if you could give me information regarding my CF mutations. I had genetic testing done about 6 years ago (through Ambry I believe) and was found to have one deltaF508 mutation and one novel mutation, K598E. Has the novel mutation been seen in anyone else since that time? I am...
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