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Steven, I am a grandma and my two cf kids have been gone for nine and 13 years. They were 29 and 26. Back in the day we had no idea of what mutations or genes we carried. We worked with Dr. Lieberman in trying to develop a carrier test. My older daughter may be a carrier and she has two...

I am amazed at all the new developments, test and treatments today. It is great. Maybe all our years of fund raising did loads of good. My two children were diagnosed at near birth or just over a year. Raising children with a chronic, often terminal illness, was very difficult. We did our...

I am amazed at all the new developments, test and treatments today. It is great. Maybe all our years of fund raising did loads of good. My two children were diagnosed at near birth or just over a year. Raising children with a chronic, often terminal illness, was very difficult. We did our...

I am amazed at all the new developments, test and treatments today. It is great. Maybe all our years of fund raising did loads of good. My two children were diagnosed at near birth or just over a year. Raising children with a chronic, often terminal illness, was very difficult. We did our...

I am amazed at all the new developments, test and treatments today. It is great. Maybe all our years of fund raising did loads of good. My two children were diagnosed at near birth or just over a year. Raising children with a chronic, often terminal illness, was very difficult. We did our...

I am amazed at all the new developments, test and treatments today. It is great. Maybe all our years of fund raising did loads of good. <br /> <br />My two children were diagnosed at near birth or just over a year. Raising children with a chronic, often terminal illness, was very difficult...

who are you I also forgot to add something, we are in love with Maui and hope to move there someday. I just need to win that dang lotto....

who are you I too am a parent. My name is Bonnie and I am a senior citizen. We now live in St George, UT but used to live in southern California. Most of my kids care was at CHOC in southern California. I had three children and two of them had cystic fibrosis. My daughter Cathy was born in...

I sent you a pm Kathie. Is there a place to post a message introducing myself and being there for anyone who may need to talk to an old CF parent veteran. So nice to meet you.

I sent you a pm Kathie. Is there a place to post a message introducing myself and being there for anyone who may need to talk to an old CF parent veteran. So nice to meet you.

I sent you a pm Kathie. Is there a place to post a message introducing myself and being there for anyone who may need to talk to an old CF parent veteran. So nice to meet you.

I sent you a pm Kathie. Is there a place to post a message introducing myself and being there for anyone who may need to talk to an old CF parent veteran. So nice to meet you.

I sent you a pm Kathie. Is there a place to post a message introducing myself and being there for anyone who may need to talk to an old CF parent veteran. <br /> <br />So nice to meet you.