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I am a very positive person but sometimes reality really hits and the reality is that this is a scary disease because you never know what tomorrow is going to bring. He is morning and scared. The best thing to do is to just be there for him. It is often difficult to share with others those fears...

I am a very positive person but sometimes reality really hits and the reality is that this is a scary disease because you never know what tomorrow is going to bring. He is morning and scared. The best thing to do is to just be there for him. It is often difficult to share with others those fears...

My son has destroyed a DS by playing it while doing his saline treatments. Now he can't play with any electronics during his treatment. I hate that he can't since it was an incentive to get him to do them.

My son has destroyed a DS by playing it while doing his saline treatments. Now he can't play with any electronics during his treatment. I hate that he can't since it was an incentive to get him to do them.

I remember feeling that way when my son was diagnosed. I used to be a new parent of CF children advocate and resource. How can I help?

I remember feeling that way when my son was diagnosed. I used to be a new parent of CF children advocate and resource. How can I help?

I remember feeling that way when my son was diagnosed. I used to be a new parent of CF children advocate and resource. How can I help?

I remember feeling that way when my son was diagnosed. I used to be a new parent of CF children advocate and resource. How can I help?

I remember feeling that way when my son was diagnosed. I used to be a new parent of CF children advocate and resource. How can I help?

This is a really hard thing to answer. My experience has not be horrible so far with CF. My son was diagnosed prenatally with an amnio and has always gained weight well with the use of enzymes. He is 4 yrs old, 5 in Dec, and has not been hospitalized yet. He does have problems with stinky poop...

This is a really hard thing to answer. My experience has not be horrible so far with CF. My son was diagnosed prenatally with an amnio and has always gained weight well with the use of enzymes. He is 4 yrs old, 5 in Dec, and has not been hospitalized yet. He does have problems with stinky poop...

This is a really hard thing to answer. My experience has not be horrible so far with CF. My son was diagnosed prenatally with an amnio and has always gained weight well with the use of enzymes. He is 4 yrs old, 5 in Dec, and has not been hospitalized yet. He does have problems with stinky poop...

This is a really hard thing to answer. My experience has not be horrible so far with CF. My son was diagnosed prenatally with an amnio and has always gained weight well with the use of enzymes. He is 4 yrs old, 5 in Dec, and has not been hospitalized yet. He does have problems with stinky poop...

This is a really hard thing to answer. My experience has not be horrible so far with CF. My son was diagnosed prenatally with an amnio and has always gained weight well with the use of enzymes. He is 4 yrs old, 5 in Dec, and has not been hospitalized yet. He does have problems with stinky poop...

One of our friends is studying to be a chiropractor and said that regular adjustments may help our son with his digestion. I am very aware and not foolish enough to believe it will cure CF in any fashion. I hate those people that claim something is going to CURE my child. I love my adjustments...

I was seven months pregnant and having trouble with my pregnancy when our amenio came back telling us that our first son had CF. It is VERY scary to find out that the baby you are carrying has an illness that may one day kill them. If I had been earlier in my pregnancy I am not sure how I would...

I was seven months pregnant and having trouble with my pregnancy when our amenio came back telling us that our first son had CF. It is VERY scary to find out that the baby you are carrying has an illness that may one day kill them. If I had been earlier in my pregnancy I am not sure how I would...

I was seven months pregnant and having trouble with my pregnancy when our amenio came back telling us that our first son had CF. It is VERY scary to find out that the baby you are carrying has an illness that may one day kill them. If I had been earlier in my pregnancy I am not sure how I would...

I was seven months pregnant and having trouble with my pregnancy when our amenio came back telling us that our first son had CF. It is VERY scary to find out that the baby you are carrying has an illness that may one day kill them. If I had been earlier in my pregnancy I am not sure how I would...

I was seven months pregnant and having trouble with my pregnancy when our amenio came back telling us that our first son had CF. It is VERY scary to find out that the baby you are carrying has an illness that may one day kill them. If I had been earlier in my pregnancy I am not sure how I would...