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  1. M

    Cayston & Medicare

    Hi everyone, Have not posted in a while and hope 2012 is treating you all well so far. I am trying to understand Cayston and Medicare. Seems like I have heard from some that Cayston is covered under part B and others tell me they are covered under part D. If you are on Cayston and covered...
  2. M

    Medigap

    I'm signing up for a medigap policy this month. Anyone have any recommendations for a reliable minimal hassle provider?<br>So far Gerber has given me the best (lowest) rate, but I am unfamiliar with Gerber as an insurance. Does anyone use them and what is your experience with Gerber...
  3. M

    little man's face on all htread entries

    Hey everyone, In every thread I click on there is this animated man's head next to each users name. Does anyone else see that?? What in the world is going on?
  4. M

    pari sprint ok for all meds?

    Hi everyone Issue for the new year. My DME provider no longer supplies the Pari LC Plus Neb cups. They now only carry the Pari Sprint Cups. I have never used Sprint cups. So are Sprint cups ok to use with the following meds: Albuterol, hypertonic saline 7%, Pulmozyme and Tobi? Thanks in advance!
  5. M

    solvay creon and source cf

    Does anyone know if Solvay still has the program where you get free source cf vitamins if you purchase creon?
  6. M

    Kidney stones

    Has anyone else with CF had kidney stones? I'm working on at least my third one since this summer and I'm sick of it!! I have read that people with CF are at risk for them because of excess calcium oxalate. I saw Urologist for it, and via the ct scan, they saw numerous stones - the largest being...
  7. M

    Acapella

    I am using the Acapella and follow the suggestions to wash the mouthpiece and dry upside down, on the end where the the mouthpiece goes. But, most the time, when I look inside the acapella, I notice that it has little droplets and has not dried out. Anyone else have this happen? And how do you...
  8. M

    some questions about the site

    1. How do I initiate sending a private message? I click there but I'm not sure what to do next. 2. What happened to the "who you are in a nutshell topic"? I finally decided to add myself to that thread and today it is gone.
  9. M

    travel with neil med sinus rinse

    Has anyone traveled with the Neil med sinus rinse? What do you do about the water situation? I usually boil distilled water. Will be staying in a hotel. I really want to be able to rinse out after so many hours in the airplane.
  10. M

    continuous glucose monitor

    Is there anyone else out there who also uses the Medtronic Guardian Sensor for monitoring their glucose?
  11. M

    Vitamin D3

    I am taking Source CF 2 times a day. I added D3 (2,000IU) a couple days ago. I think I had a bad response to it even after the first dose: severe abdominal pain started up high and went around to my back. Has anyone else had bad reaction to fat soluble D3? A CF doc I had a consult with...
  12. M

    adults who have cfrd, take insulin and have gastroparesis

    wondering if anyone in the cfrd community who takes insulin also has delayed gastric dumping (gastroparesis). I've been having bg lows 1 to 1.5 hours after taking insulin & eating and have severe distention (especially after dinner). so i treat for the low and a few hours later the bg is up way...
  13. M

    how many pillows?

    Hello Everyone! I am wondering if any one else with CF sleeps propped up on lots of pillows to decrease extreme nasal drip & morning congestion. I recently purchased a wedge pillow to help with this. So I am wondering if anyone else uses this as well.
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