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Thanks very much. They havent recommended physio for him but he is on antibiotics so i guess they are treating him as if he has CF. Do you know if anyone can show any symptoms if they only carry one gene? This is probably pure coincidence but his Mum that carries the C866y gene has never been...

Hi I am glad to hear your daughter is doing well and is receiving good care. Would you mind me asking what is the rare mutation she has? thanks Jacqui

Hi I joined a little while ago on behalf of my friend who has twin boys. Meanwhile, the hospital took an age testing as apparently one son has one CF gene and one rare mutation. All the results have come back and apparently her husband (who has now left her) has the CF gene whereas my friend...

Thanks very much. It is better to be prepared and it does seem like he is showing symptoms of CF too. In the main they are merely two beautiful little boys but it is good to be prepared and to know how to deal with them and keep them as healthy as possible. She gets the results of the second...

Hi I came across here when searching for information for a friend of mine. She has 8 mnth old twins and one didnt pass meconium for 48 hrs so bloods were taken. Initially they told her that he had only one gene but then she was called back and said they had also found C886 and wanted to start...