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I haven't log on for a very long time. I am very sorry for not being part of this great family. I took it really hard when I lost two very close friends that I met here and felt I could not deal with talking and becoming close to anyone and maybe lose them. I recently had a double lung...

After only 6 months and two calls I finally had the surgery two weeks ago. I am home already and doing an hour on the treadmill on a slow pace. I guess I should know these questions but coming from a doctor is always different than from someone who went through with it. Three things that I now...

Ok, I haven't used my port in over 6 months now and had to plug myself back on for a round as I have been feeling like crap. Also going into the Hospital on Tuesday for them to check me out and give me the thumbs up or down to put me on the lung transplant list. I got the IV's in today and...

Not sure if this is the correct place to post this but I want to build a chopper and try to raffle it for the CF foundation. This is unlike any other chopper and way better than what the OCC's boys or Athena have ever built. But would like to see if I can get funding to build it and then all...

As some of you may be aware I recently got a double port. Never had one and had been with a pick line since August. I even got a link from here that showed how to access the port. My nurse came one time last week with another nurse because she have never done ports before. This week it was a...

I posted in the Hospital section last week that I was going in for a port. I have had a pick line since August and the doctors said they wanted to put a port. Never had one before and the surgery went fine last week. I have been using the pick line as they said it would take about seven days...

Never had one and the doctors feel that at this point is best if I get one and continue the in home IV's that I've been doing since August through a pick line. I have read that most of you who have one like it a lot better than the pick line. The doctor told me I would have to stay for two...