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Thank you! Good to know about the ursodeoxycholic acid. Glad to hear you were able to resume your treatment ?

Hi! I just saw your post. My 27 yr old son is still going back and forth with CF care team and liver specialist. His enzyme levels remain high but was told by CF doc that they could get him back on Trikafta using the “elevated liver enzymes” dosing but need green light from liver doc. He’s...

I’ve read that and so we’re hoping that will be an option for him. Thank you for your input!?

My 27 year old son started Trikafta a few months ago. His recent bloodwork showed one of his liver enzymes (not sure which one) were 5x above normal. Needless to say his doctor instructed him to stop taking Trikafta immediately. They will recheck in two weeks. This is so discouraging as you can...

I have a 15 year old son with CF. He was diagnosed when he was 5mos. old and has been pretty "healthy" with mainly digestive problems. His dad and I never thought we would have to fight the drug battle with him having CF but have recently learned he has been smoking pot for over a year. As...

I have a 15 year old son with CF. He was diagnosed when he was 5mos. old and has been pretty "healthy" with mainly digestive problems. His dad and I never thought we would have to fight the drug battle with him having CF but have recently learned he has been smoking pot for over a year. As...

I have a 15 year old son with CF. He was diagnosed when he was 5mos. old and has been pretty "healthy" with mainly digestive problems. His dad and I never thought we would have to fight the drug battle with him having CF but have recently learned he has been smoking pot for over a year. As...

I have a 15 year old son with CF. He was diagnosed when he was 5mos. old and has been pretty "healthy" with mainly digestive problems. His dad and I never thought we would have to fight the drug battle with him having CF but have recently learned he has been smoking pot for over a year. As...

I have a 15 year old son with CF. He was diagnosed when he was 5mos. old and has been pretty "healthy" with mainly digestive problems. His dad and I never thought we would have to fight the drug battle with him having CF but have recently learned he has been smoking pot for over a year. As...