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If you are on Facebook, would you mind helping me out? I wrote any essay abot a lesson I learned in dealing with Maggie's diagnosis for MomSquak. The essay that receives the most comments gets a job offer - a job I could really use so that I can continue to work from home. I would greatly...

Hi. A friend of mine is looking to walk for our great strides team at the walk location in her area. Plus my cousin is interested for where she lives too. Can anyone tell me what being a National Team means? I know the team needs to raise at least $20,000 and heard something about a monthly...

Anybody have any ideas? Maggie had been doing great on zenpep. everyday, 9am, solid sinking poop. this was the case for about 6 months. then in october or november it stopped and turned to that horrible fluffy, orange, shiny mess. so we increased her enzyme dose. but nothing changed. so we did a...

So both girls are sick. Coughing, sneezing, ear infections. They think it's RSV which freaked me out. I have a kid with CF and a 7-week-old! So anyway, we ended up taking Katie to the ER the other night 'cause my husband got really scared when he heard her wheezing. Well they wanted to xray...

has anyone ever tried on of these to help their CFer or themselves: <a target=_blank class=ftalternatingbarlinklarge href="http://products.salt-care.com/Breath-Easy-Ultrasonic-Salinizer-_p_13.html">Breath Easy Ultrasonic Salinizer</a>

Hi all. Katherine Maria was born on December 8th! 8lbs, 6oz and 21 inches! She is doing great, but not so much me. The baby blues are not helping me get through this waiting period. Our CF doc called the VT dept of health a few weeks ago and requested that her newborn screen results get called...

I think I'm doing the right thing. actually I'm pretty positive I am. My 18 month old niece has croup. Thanksgiving will be day 6 and she will hopefully be better. But my sister and her family (husband and four kids) are still driving the 4 hours to my parents' house for Thankgiving. I live...

Maggie got her vest this week! YAY! but she keeps grabbing her ears or putting her fingers in them as if they are hurting or bothering her when the vest is going. I ask her if her ears hurt and she just says Yes. But who knows because she is only 21 months. I turn the vest down to see if it...

So I was diagnosed with gestational diabetes today (29 weeks pregnant) and it is stressing me out to no end. I have been so worried about the baby having CF but since I can't control that, I wasn't feeling pressure.... now I'm worried since controlling the diabetes is in my hands. In addition...

Hi. I recently had friends come to visit and one hadn't been feeling well but had been on antibiotics for a few days. I have been told by doctors that 24 hours on antibiotics means you are no longer contagious. Their daughter was sneezing a lot but they said it was allergies. They were concerned...

We were at the beach today and Maggie wouldn't drink from her sippy cup (typical 18 month old!). So I gave her some water from a water bottle and after a few sips she got wide eyed and started coughing. She coughed for about 1 minute and then seemed fine. We came home about 3 hours later and she...

if you live in Alabama and are interested in a CF license plate: <a target=_blank class=ftalternatingbarlinklarge href="http://lapsforcf.org/licenseplate.html">http://lapsforcf.org/licenseplate.html</a>

(also posted in exercise and nutrition) Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but... There aren't many studies done on this topic, but there was one done in the early 90s (or late...

Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but... There aren't many studies done on this topic, but there was one done in the early 90s (or late 80s). of those who participated, the...

Hey... just wondering. Just ordered a supply of straight Ultrase for Maggie, went to clinic yesterday and they changed her to a new enzyme. So now I have 10 bottles of 100 Ultrase each completely sealed in their orignial bottles... what can I do with these? Can I give them to someone? the...

Hey. Maggie is now one and while she started eating yogurt and cheese a couple of months ago without problem, she just started milk last week. The day after she started drinking milk (about 2 oz at night and 2 oz in am with her vitamins, zantac and salt) she started having these HUGE, wet...

We just purchased a Blueair air purifier 601. The CADR rating is great and it says that it emits no ozone. So it just arrived and I started to second guess my research. I looked it up again and found an article saying that since it uses negative ions it produces .03ppm of ozone which is below...

Just wondering what states you all live in and whether or not they have children with special health needs programs. and if so what do they cover? here in vermont we have the program and they cover everything CF related for Maggie's lifetime. They give us a deductible each year which this year...

Please tell me that I'm not crazy. My sister arrived last night at my parent's house (5 mins from me) and this morning her 3 year old started coughing. Maggie is now 11 months old and doing great.. not a cold, not a cough...knock on wood. My mom is panicing about me saying we may not be able to...

Had a family event last night and I missed the early cf care webcast... anyone know if there's a way to watch it?