Search results

I was transplanted there and also live in Ohio in the Toledo area so about 3.5 hours away. I can say with confidence that I would not be alive if I had went anywhere else. If you have cepacia, I would recommend them because at the time of my transplant, they were the only place in the country...

I also thought there would me more about the transplant on there but oh well. I really wish they hadn't followed that nurse with her private life. I get showing that they are people too but we can watch Greys for that part, especially those kinds of issues. I can see if it had to do with the job...

after transplant, what are some things that you can do that you couldn't do before? I can do anything I put my mind to. It may require more precautions but not a big deal. I think about things more carefully before doing things if I feel it might be risky and talk to my docs about them. The...

after transplant, what are some things that you can do that you couldn't do before? I can do anything I put my mind to. It may require more precautions but not a big deal. I think about things more carefully before doing things if I feel it might be risky and talk to my docs about them. The...

I know that others may disagree with me but I believe that your mental health and happiness is half the battle. I dealt with depression issues and other things when I was younger and going to CF camp (when it was still around) helped me a lot by letting me meet others. This forum can do that as...

I know that others may disagree with me but I believe that your mental health and happiness is half the battle. I dealt with depression issues and other things when I was younger and going to CF camp (when it was still around) helped me a lot by letting me meet others. This forum can do that as...

I agree with some of the posts listed above. I used the NuvaRing for years and loved it. I ALSO used condoms OR spermicide inserts (since I am engaged and KNOW we are monogamous). There was always a second birth control option used to make sure that I was covered. I have been told by my docs and...

I agree with some of the posts listed above. I used the NuvaRing for years and loved it. I ALSO used condoms OR spermicide inserts (since I am engaged and KNOW we are monogamous). There was always a second birth control option used to make sure that I was covered. I have been told by my docs and...

My parents took us to Disney World several times when I was a child and I never had any problems with my CF. We stayed at the resorts and used Disney transportation. The fast pass thing is relatively new and very helpful along with the new disney moble app which is available on iPhone and...

My parents took us to Disney World several times when I was a child and I never had any problems with my CF. We stayed at the resorts and used Disney transportation. The fast pass thing is relatively new and very helpful along with the new disney moble app which is available on iPhone and...

After I had my transplant, I felt amazing! I was solid on taking my pills but not so much on the other stuff. I got the sugar issues following transplant because of the meds along with high blood pressures and kidney issues. I am getting much better at the insulin because my docs put me on the...

After I had my transplant, I felt amazing! I was solid on taking my pills but not so much on the other stuff. I got the sugar issues following transplant because of the meds along with high blood pressures and kidney issues. I am getting much better at the insulin because my docs put me on the...

I use the Pari Eflow as well and would recommend it to anyone. I have had a transplant so I only use it for albuterol and Tobi (which is specially mixed by the pharmacy so the dose is correct, using regular name-brand tobi isn't formulated for delivery through the eflow). Combined, both of my...

I use the Pari Eflow as well and would recommend it to anyone. I have had a transplant so I only use it for albuterol and Tobi (which is specially mixed by the pharmacy so the dose is correct, using regular name-brand tobi isn't formulated for delivery through the eflow). Combined, both of my...

I am also from the Toledo area and got transplanted at UPMC. I was evaluated in 2002 before I had cepacia. My options at the time were Chicago, Cleveland, or Pittsburgh. I didn't want Cleveland because they were just babies in lung transplant compared to the other two at the time and Chicago had...

I, too, have had many thoughts about death. When I was in high school (the only one in my school with CF), people knew I was sick and would ask about it. I worked my tail off to keep up in class when I was sick and the ones who asked me about CF knew that and would then ask 'wouldn't you be...

I, too, have had many thoughts about death. When I was in high school (the only one in my school with CF), people knew I was sick and would ask about it. I worked my tail off to keep up in class when I was sick and the ones who asked me about CF knew that and would then ask 'wouldn't you be...

I was not on it before tx except when I had some auto-immune issues and then I would take 40mg a day for 10 days. I do remember my docs worrying about side effects if I took it any longer than those few days each time. I am on it for life after transplant (5mg/day) though because it is part of...

I was not on it before tx except when I had some auto-immune issues and then I would take 40mg a day for 10 days. I do remember my docs worrying about side effects if I took it any longer than those few days each time. I am on it for life after transplant (5mg/day) though because it is part of...

I was not on it before tx except when I had some auto-immune issues and then I would take 40mg a day for 10 days. I do remember my docs worrying about side effects if I took it any longer than those few days each time. <br /> <br />I am on it for life after transplant (5mg/day) though because it...