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  1. M

    Anyone in the Denver Area

    We are thinking of moving to the Denver area. We live in Eastern NM. We have to drive 4 hours for appts. Anyone from Denver who can tell me how it is there and what kind of Dr's there are. Also how does the weather affect your cfer? We have a lot of heat and dust in the air all the time. I can...
  2. M

    Share what you do when in the hospital

    Our 11 yr old son was admitted today. He grew out pseudomonous and MRSA. Of course this isnt our first time in the hospital but as most of you know it can be boring! I am glad for laptops and wifi but it doesnt really help sometimes. Can you give ideas of what you do? We have movies and games...
  3. M

    Programs for medications/anyone else on Sporanox?

    Our son has CF and is 10 years old. We have insurance that is pretty good however he has been dx with a fungal infection in his lungs. In order to treat it he has to be on Sporanox for 4-6 months. Because of his weight he has to be on the liquid and not pill forms. This is a VERY expensive...
  4. M

    3 in 1...Gallstones, pen pals and telling your child the outcome

    Hey all. I am pretty new here so bare with me. My son is 10 and has CF. I have several issues I would like to ask about. First and most important...we just got out of the hospital for a "tune up". He has been having a lot of stomach pain. They found out that he has gallstones and said this is...
  5. M

    Pseudomonas

    My son is 9 and was dx with CF when he was two. He has been fairly healthy most of his life. He cultured Pseudomonas and was put on Tobi. He was on it for over a year. They took him off it ast spring. But since he's been off the Tobi he has been so sick. He has aquired bacterial and fungal...
  6. M

    New to CF forums

    Hey All! Well I am new to the forums and sort of a new mom. Our story is a little different. I remarried in 2006 to the most amazing man I have ever met. He is the most positive man as well. We have a total of 5 children. Has two and I came in with 3. The word "step" does not exist in our...
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