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Please take some time to watch this video honoring the late great Matt Scales. A singer who died from CF. A few CFers who also sing got together and made a music video to the his beautiful song "Breathe". It is very heart warming and inspiring. To see the video, please follow this link: <a...

You can view the newspaper articles by either following this link <a target=_blank class=ftalternatingbarlinklarge href="http://runsickboyrun.blogspot.com/2009/10/check-it-out-hot-off-press.html">http://runsickboyrun.blogspot....out-hot-off-press.html</a> or this link <a target=_blank...

Here is an email I received recently: Hi Ronnie, I saw an invitation from you for queries by new parents. My daughter has a four- month-old son who was diagnosed at two weeks old; she does not have time for Facebook or even for emailing right now. Our little Aidan sleeps only around...

If you go to www.NatureMade.com you will find 5 stories of people doing their best to make the world a better place. Somehow, I managed to get my CF story featured and am excited about the opportunity to bring awareness to this disease. I highly encourage you to check it out!

So, should parents who know they are carriers or already have a CF child (or children) "roll the dice" and have more children? If you'd like to read the post that got me thinking about this, please <a target=_blank class=ftalternatingbarlinklarge href="http://tinyurl.com/yba7h4e <br ">">click...

I just got done reading <a target=_blank class=ftalternatingbarlinklarge href="http://talanaf.blogspot.com/2009/09/i-know-i-havent-blogged-in-forever.html">Talana's blog</a> about her issue with United Airlines and the problems they gave her regarding her carry-ons and medical equipment. Check...

I haven't been part of many clinical trials but I am looking forward to getting more information on current ones. What has your experience with clinical trials been? Are you in any currently? What's the most dramatic improvement you've ever had during a clinical trial? To here more thoughts of...

Here's the link: <a target=_blank class=ftalternatingbarlinklarge href="http://runsickboyrun.blogspot.com/2009/07/cystic-fibrosis-and-me-cf-short-film.html ">http://runsickboyrun.blogspot....me-cf-short-film.html </a> Enjoy!

I just posted an email exchange on my blog dealing with the subject of making our friends aware of Cystic Fibrosis. I was hoping to get your thought and feelings on this topic and if you have any specific "strategies" when doing so...Thank you You can find my exchange here on my blogs or follow...

So I wanted to film my PICC line placement for my blog and just before I was ready to go into IR I was told "no go". Up until that point everyone was on board and my doctor actually wrote an order allowing me to film the procedure. I told them that I only wanted my arm in the shot and that no...

So after four months of committing to an exercise program I have some more positive news. After one month out of the hospital my PFT's went up 10%. Now, three months after that last PFT's my numbers are the same. They haven't declined one bit! That's big news for me cause I generally have a...

If you have a Twitter account, PLEASE follow @StreetsofNY. They will donate 1 dollar for every new follower they get today, Friday June 26th. If you don't have a Twitter account, just go to Twitter.com, establish an account, and then follow StreetsofNY. We're all about the CF community and this...

I just had an email exchange with another cystic about wether or not to get listed and the mentality it takes for you to allow yourself to be put on the list. I will post think link to the exchange and I encourage you to give your input wether it be on my blog or on this forum. Also, in...

If you go over to www.RunSickboyRun.com I have posted a PSA that I helped with for a CF Fundraiser that is coming up. We would like to do more videos in the future. I would love to hear some of your feedback in regards to content, verbage, concept, etc... Thank you and have a great day!!!