I guess I ended up running away from this site? Maybe I got too emotional, or I was just at a hard spot in my life. But anyways...here we are. Admitted to the hospital. I am going to link <a target=_blank class=ftalternatingbarlinklarge href="http://teamskyesthelimit.blogspot.com">Skyes Blog</a>...
Skye was just diagnosed with asthma and was put on albuterol twice a day by neb. She takes pulmozymes already in the morning when we do her first vest treatment of the day. Does anyone have any suggestions on when I should do the albuterol by neb? I will be doing one at night and I am thinking...
Skye is not newly diagnosed but I was not sure where to post this question. I am trying to get a vest for my daughter, she is 18 months old and I know a lot of families who have received a vest younger than 18 months. The clinic in Nebraska said she could get one fitted but sadly we are living...
It is my daughters first birthday in October and I wanted to get her a Sphynx kitten. They are hairless/furless so I thought wow this pet is mad for CF kids. I just want to make complete sure before I pay this much money for a kitten that it is indeed okay for Skye to be around. I think it will...
I looked on the CCF.ORG website for a care center and there is one. We are moving there in later July, my Husband is in the Navy and is being stationed there for 2 years. I looked at their stats and they only have 2 patients there? I am really concerned about this and am hoping she can get the...
This is my first time posting on this forum, I have been reading for awhile just never reached out to anyone.
Skye is 5 1/2 months old. We have had a horrible 5 months. She has been in hospitals more than she hasnt been. At birth she had to have intestinal surgery and came out with a g tube...
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