Search results

our dr wrote a script to start zinc today for our 7mo daughter. she didnt seem too confident about it but just said it "seems to help some" so im not confident in her since she isnt.. are you or your kids on zinc? did it help? any info out there for me? TIA

our dr wrote a script to start zinc today for our 7mo daughter. she didnt seem too confident about it but just said it "seems to help some" so im not confident in her since she isnt.. are you or your kids on zinc? did it help? any info out there for me? TIA <img...

so i saw this about showers and cf and now im worried about letting my dd shower. shes only 7mo old but i take her in the shower with me and hold her and shower. ive only done it a handful of times as its kinda dificult.. every other time shes in the bath tub. just wondering if any of you guys...

we are signed up to do the great strides walk in my dd's name. im wondering if any of you have done one before? i wanted to walk with my dd (inthe stroller) but im not sure if she is allwed in because she has cf. she is still in a carrier so we could cover her completly between the carrier...

we had our CHLA apt today. they said her weight gain is fantastic. she has gain 2lbs since her last visit, so in one month she has gained 20% of her body weight. they said the feeding regimen i put her on is doing well. last time we were there she had a lung x-ray and they saw a spot on it but...

my dd is 4 months old and we use the little cup for her chest. at what age is she allowed to use a vest?

my 3mo old dd gets 2 treatments a day with her pari baby. we keep them and her meds in a small clothe lined basket next to her nebz machine in the living room. i havnt been told i need to store them some where specific or anything so i was just wondering where you all store yours? have you...

so i have this germ guardian nursery sanatizer. weve started washing her nebz in hot soapy water then letting them air dry and then sanatizing them in the germ gaurdian. its gets upwards of 170 degrees. do you sanatize yours? anyone use this kind of sanatizer? i asked my dd's cf dr about it and...

my 3mo old dd gets 2 treatments a day with her pari baby. we keep them and her meds in a small clothe lined basket next to her nebz machine in the living room. i havnt been told i need to store them some where specific or anything so i was just wondering where you all store yours? have you...

my dd is just now 3mo old and she is 9.8lbs. they have her at 2 pills of creon before each feed. they are still not happy with her weight gain and said instead of upping her meds yet again they want to try and antacid. she explained that if she has too much acid in the stomach than her enzymes...

we had our childrens hospital apt today... its not great... <img src="i/expressions/face-icon-small-mad.gif" border="0"> well gwen is 8lbs 9oz. she is in the 50% for her height (still) and is NOW in the 5% for her weight. she was between 5-10% last month and is now for sure at 5%. they upped...

how many kids do you have? how many have cf and how many do not?

i have 1 child. she is 2mo and has cf. i wanted to know: out of all the kids you have, how many have cf, and how many do not? i know i only have a 25% chance of having a child with cf but i just feel like im always going to be so unlucky <img src="i/expressions/face-icon-small-sad.gif"...

i have a 2mo old daughter that is going to be starting nebs (preventativly) and i read everyone here say keeping them clean is a major thing.. so is soap and water not good enough? how do you clean them? thanks for any info -elisa

HI! we have our dd who is 7 weeks tomorrow. she had her sweat test today (awaiting the results) shes had 2 blood/dna tests so we know shes pos for cf. eitherway.. shes starting lung treatments as a preventative thing. her lungs are great for now. we were given the inspiration elite nebulizer...

well were home from our first visit to childrens hospital it went pretty well. they upped her meds to one full pill before every feeding (instead of just half) and we had a little scare... were suposed to be suplamenting her salt intake and were told 1/8th tsp. in every bottle, but it turns out...

can cord blood fix cf? we didnt bank our dd's but i was thinking about it today and was wondering if we had, could it have helped her? could a future sibling's cord help her? or does it not work that way? i really dont know much about cord blood (or cf for that matter, im still pretty new at all...

ok so we have a 4week old baby girl. finaly home from the NICU. we have to give her half a capsule of enzymes before every meal. every nurse tryed different ways to give them to her to make it easy for us and her... we tryed mixing them in a little drop of milk, tryed giving them with a...

ok so we have a 4week old baby girl. finaly home from the NICU. we have to give her half a capsule of enzymes before every meal. every nurse tryed different ways to give them to her to make it easy for us and her... we tryed mixing them in a little drop of milk, tryed giving them with a...

hi. my name is elisa and my dd was just Dx with cf yesterday. we posted over in the newly Dx and found lots of support already. my question is, what do we have to do in our home and for our dd to keep her from getting sick? what to you have to clean in your house daily? (phone, door knobs etc)...