Search results

  1. D

    R117H question

    Just wanted to let you know that you can go to cff.org and look up a care center located near you. Call them directly and ask for the CF Coordinator or the Genetics Counselor. They will probably be able to direct you in the steps you need to take. It may also be helpful to contact cff.org's...
  2. D

    R117H question

    Just wanted to let you know that you can go to cff.org and look up a care center located near you. Call them directly and ask for the CF Coordinator or the Genetics Counselor. They will probably be able to direct you in the steps you need to take. It may also be helpful to contact cff.org's...
  3. D

    R117H question

    Just wanted to let you know that you can go to cff.org and look up a care center located near you. Call them directly and ask for the CF Coordinator or the Genetics Counselor. They will probably be able to direct you in the steps you need to take. It may also be helpful to contact cff.org's...
  4. D

    R117H question

    Just wanted to let you know that you can go to cff.org and look up a care center located near you. Call them directly and ask for the CF Coordinator or the Genetics Counselor. They will probably be able to direct you in the steps you need to take. It may also be helpful to contact cff.org's...
  5. D

    R117H question

    Just wanted to let you know that you can go to cff.org and look up a care center located near you. Call them directly and ask for the CF Coordinator or the Genetics Counselor. They will probably be able to direct you in the steps you need to take. <br /> <br />It may also be helpful to contact...
  6. D

    R117H question

    <div class="FTQUOTE"><begin quote>I'm assuming the CF center is the same place we had her test done? It was at Phoenix Children's hospital and the tech we saw for both sweat tests also said a sweat test was enough of an answer.</end quote></div> A sweat test is a tool to determine if one has...
  7. D

    R117H question

    <div class="FTQUOTE"><begin quote>I'm assuming the CF center is the same place we had her test done? It was at Phoenix Children's hospital and the tech we saw for both sweat tests also said a sweat test was enough of an answer.</end quote></div> A sweat test is a tool to determine if one has...
  8. D

    R117H question

    <div class="FTQUOTE"><begin quote>I'm assuming the CF center is the same place we had her test done? It was at Phoenix Children's hospital and the tech we saw for both sweat tests also said a sweat test was enough of an answer.</end quote></div> A sweat test is a tool to determine if one has...
  9. D

    R117H question

    <div class="FTQUOTE"><begin quote>I'm assuming the CF center is the same place we had her test done? It was at Phoenix Children's hospital and the tech we saw for both sweat tests also said a sweat test was enough of an answer.</end quote> A sweat test is a tool to determine if one has CF. It...
  10. D

    R117H question

    <div class="FTQUOTE"><begin quote>I'm assuming the CF center is the same place we had her test done? It was at Phoenix Children's hospital and the tech we saw for both sweat tests also said a sweat test was enough of an answer.</end quote> <br /> <br />A sweat test is a tool to determine if one...
  11. D

    R117H question

    I know that in Louisiana the elevated IRT level is the indicator to have the partial genetic testing done. Our son actually didn't have an elevated IRT, as per the cutoff, but was in the top 5% for births that day in the State. This normally then prompts at least partial DNA testing. If you...
  12. D

    R117H question

    I know that in Louisiana the elevated IRT level is the indicator to have the partial genetic testing done. Our son actually didn't have an elevated IRT, as per the cutoff, but was in the top 5% for births that day in the State. This normally then prompts at least partial DNA testing. If you...
  13. D

    R117H question

    I know that in Louisiana the elevated IRT level is the indicator to have the partial genetic testing done. Our son actually didn't have an elevated IRT, as per the cutoff, but was in the top 5% for births that day in the State. This normally then prompts at least partial DNA testing. If you...
  14. D

    R117H question

    I know that in Louisiana the elevated IRT level is the indicator to have the partial genetic testing done. Our son actually didn't have an elevated IRT, as per the cutoff, but was in the top 5% for births that day in the State. This normally then prompts at least partial DNA testing. If you...
  15. D

    R117H question

    I know that in Louisiana the elevated IRT level is the indicator to have the partial genetic testing done. Our son actually didn't have an elevated IRT, as per the cutoff, but was in the top 5% for births that day in the State. This normally then prompts at least partial DNA testing. <br />...
  16. D

    R117H question

    Hi, My name is Kelsey. I have a 8 month old son with these same mutations. His paperwork came back with the 7T/9T variant. The chart is confusing for us too. All the doctors seem to tell us are that he will probably have a mild case or he may not have any symptoms. That is so frustating to...
  17. D

    R117H question

    Hi, My name is Kelsey. I have a 8 month old son with these same mutations. His paperwork came back with the 7T/9T variant. The chart is confusing for us too. All the doctors seem to tell us are that he will probably have a mild case or he may not have any symptoms. That is so frustating to...
  18. D

    R117H question

    Hi, My name is Kelsey. I have a 8 month old son with these same mutations. His paperwork came back with the 7T/9T variant. The chart is confusing for us too. All the doctors seem to tell us are that he will probably have a mild case or he may not have any symptoms. That is so frustating to...
  19. D

    R117H question

    Hi, My name is Kelsey. I have a 8 month old son with these same mutations. His paperwork came back with the 7T/9T variant. The chart is confusing for us too. All the doctors seem to tell us are that he will probably have a mild case or he may not have any symptoms. That is so frustating to...
  20. D

    R117H question

    Hi, My name is Kelsey. I have a 8 month old son with these same mutations. His paperwork came back with the 7T/9T variant. The chart is confusing for us too. All the doctors seem to tell us are that he will probably have a mild case or he may not have any symptoms. That is so frustating to...
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