Search results

My 5yr old got a feeding tube (the mic-key button) about a year ago. We've always let her control who touches it and when. This makes changing it really hard, but we only change it quarterly. We've started running it into the night and come in to disconnect it late after she is asleep. She...

My daughter has cultured staph auras (Not MRSA) in her lungs. I asked about treating it and the clinic told me staph is just part of having CF they don't treat it unless it's symptomatic. Is this right? Normal? Or just lazy? She has a known and treatable lung infection but instead of trying to...

We're considering using a feeding tube for our 2yr old CFer. I'm nervous and worried that it will make her unhappy. She loves to dance and play and I want her to feel good. An individual in my community with a CF son (who never had a feeding tube) has told me that 2yr olds and feeding tubes...

We have a daughter w/CF and are considering IVF/PGD. What are the chances our daughter would misunderstand our desire to have a CF free baby? We love our little girl so much but feel like if CF is really preventable it would be more responsible to prevent. (That's just our personal decision. We...