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  1. J

    Any ideas on this?

    At my PFT on Monday, I learned my FVC and FEV1 have both dropped by over 20%, putting me at 60%.  Although it was worse than expected, I knew thing haven't been right recently.<br><br>About a month ago, I became suddenly short of breath and had a rather severe pain between my left shoulder and...
  2. J

    Oil of Oregano

    My mom is all about natural remedies (I'm not a big fan myself) and always wants me to try various things. The latest is oil of oregano. I know some people on this site use it, and I always give these things a try to keep my mom happy. Question, though--is it okay to use that kind of thing at...
  3. J

    maybe a clot in my port

    I went yesterday for my monthly port flush, and the nurse couldn't get a blood return. All that came out was this icky brown stuff. Once that was out, nothing else would come out. She finally spoke to a doctor, and he said it sounds like I probably have a clot in the line. That sounds like a...
  4. J

    pancreas?

    I've had some abdominal pain the last couple of days and am wondering if it may have something to do with my pancreas. It began with sudden sweating, nausea, and really severe pain right under my rib cage. After 30 minutes to an hour, it suddenly went completely away on its own. A couple of...
  5. J

    Are there still unknown mutations?

    I saw some talk about this in another thread and am curious. Testing was done for me in college (quite a while ago!), and it revealed I have a DF508 and an unknown mutation. Speculation is it's because of the unknown mutation that my downward progress has been much slower than the average...
  6. J

    Vest

    Although my doctor has written some letters, my insurance will only pay 50% for a vest, which still does not make it workable for me. Is there anywhere to get help?
  7. J

    Pari Nebulizer Compressors

    I'm hoping someone can help me. I have a Pari Proneb Ultra and a Pari Proneb Ultra II (one for use at home, and one in the car). The Ultra II has never worked as well as I expected and takes much longer (25 minutes for Tobi versus 15 on the older model). I use LC Sprint nebulizers with both...
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