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Hello Cf Family! I have just started a petition to try and ban smoking at the entrances to businesses. I have found that since many restaurants have banned smoking, that the smokers sit right outside the front door, which makes the concentration even higher that we must walk through. I am not...

Hi everyone! I just wanted to post this here so I make sure the word is out! <th class="label"> </th> <td class="data"> </td> <div class="description summary"> <div id="id_4dd824f61b7bf8048361537" class="text_exposed_root text_exposed">Footsteps for Philip will be screening this amazing...

I have seen several mothers post that their children with CF receive social security. This is not something we need right now, but I was curious as to how this all works? What criteria do they have to meet and does it affect anything in th efuture for them?

Hi all! Starting tomorrow I will be doing my month long CF awareness month posts on facebook. I will post a fact each day for the entire month. I want to do more than the average well known stuff...avg life expectancy is 37.4..etc. If you have any suggestions, please post them below. These will...

I have a question. Not trying to start any drama :-) but I need to ask. Has anyone here ever seen a CARRIER test positive on a sweat test. Not borderline, but positive. I read somewhere that DF508 may be able to cause high sweat results even with only one mutation. Any thougts?

We just started hypertonic saline. I was told to Do his vest therapy and after give the saline. We were told not to do pulmozyme in the same session. I have some people telling me this is what they do and some people telling me otherwise. What order do you all do for your children or yourself...

Some of you know, Philip (and our whole house) is getting over brochitis, sinusitis, etc...to the tune of over $6000. The grandparents have Halloween at their house every year. Our kids are the only grandkids still young enough to go trick-or-treating. Anyway, my husband's sister is getting over...

So, I am on Facebook a lot and have a large amount of friends from the CF community. Some of you are from here, but some aren't. I'm always looking for more to reach out too for questions, etc. If you are interested, I am at <a target=_blank class=ftalternatingbarlinklarge...

Help! I know there are plenty of creative moms on here that can help. My oldest is turning five in a few weeks. We always have the parties at our house. While most everyone there will know my youngest has CF, there will likely be a few newbies from preschool. I am trying to find a polite way to...

We moved into our house 7 years ago. The previous owners were heavy smokers. Every now and then my mom notices a cigarette smell, but me and my husband do not. Anyway, we are getting ready to paint some of the walls in the house. The man at lowe's told me that Kilz Oil based primer is the only...

Hi everyone! I know we all do whatever we can to raise money and awareness for CF. PLEASE take a moment to read this post and consider it. I have been nominated by the CFF as one of the Foundation's Finest. It is the first year Virginia is hosting it and we are doing our best to raise awareness...

My 11 month old has had a sinus infection for a few weeks now. Did a round of Bactrim, and now Augmentin. Also put him on prednisolone. The steroids seemed to have gotten rid of his cough, finally. They did a nasal wash and culture last week. The results came in...still staph (few) and also...

I just have a few questions for everyone. My son has had a virus that he caught from his brother. It has been causing runny nose and a cough. He did a round of Bactrim (he cultured staph). The cough/runny nose is till here. Dr thinks it is now a sinus infection. He is on Augmentin now. Dr said...

Okay, here goes... I know this is going to sound like denial, but it is not. It's just recent confusion and i hope you guys can help. My son is almost 10 months old and has CF. His newborn screen came back high twice. We then had a sweat test done at a CF center. I honestly do not remember the...

I'm hoping someone can help me here. A friend has started her child on Pulmozyme. This drug has never been mentioned at clinic visits. I looked it up online (Pulmozyme's official website) and it says it is used to increase FEV1 and keep away resp. infections. My son has never really been sick...

My son is 9 months old. He has been on enzymes since he was 3 weeks old. He has always taken 1 ultrase before meals. Other than reflux, he has never had any issues at all and shows no signs of CF yet. He has always been 90th percentile + in weight and height. They did a stool sample at 3 weeks...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/?ref=logo#!/petnurse?ref=profile">Profile</a> I'm just looking for friends with similar lives on facebook. I have a 9 month old with CF for those of you who don't know me. Please look me up. :-) Thanks

Hello, Can anyone give me some ideas of places to make custom Tshirts for our GS team this year. Zazzle and Cafe Press seem to be limited on how much you can put on the shirts. Any suggestions?

I have an 8 month old with quite a few teeth coming in. I swear they look slightly gray (or maybe I am just seeing things). Can any of the CF meds cause this? He takes Aquadeks, enzymes, zantac, salt. Thanks!

I am just curious. My 8 month old takes 1 enzyme (the lowest dose) before meals. His stools have never been abnormal, except for being stinky. I hear a lot of babies that take multiple pills. I just thought I would ask around. I know he doesn't need more. I just wanted to see what others take.