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My son (15) got a rash which I am pretty sure was caused by bactrim. His was a large red area on his side and abdomen with tiny raised bumps. It was very itchy. We stopped the bactrim, took a benedryl, the rash was gone the next day (although it still itched) and per doctors orders we started...

My son with CF is 15. When he was born we had a cat which lasted till he was about 10 yo. When he was 1 we got a golden retriever and we got another one when he was about 10. He is crazy about our dogs, they are always with us. There have been studies that show that living with animals from...

Hi Julie, Have you watched the film The Power of Two, it was just released. You can get it on i tunes, or On Demand. I watched it last night. It is the story of twin sisters who have transplants, it is very powerful and well done. It is emotional but when you see their lives post transplant...

My son who is now 15 was diagnosed with liver disease when he was 12. He was diagnosed due to an enlarged spleen they found on ultrasound when they were looking at something unrelated. As soon as they realized there was liver involvement they put him on Ursodiol, which is the same thing as...

Hi, I have a son who is 15 and we have had our share of school issues. Middle school was the worst, for some reason they seemed so unreasonable and difficult. The high school he is at is so much more accommodating to kids who may need something "different" than everyone else. A couple ideas...

I am a "former" finger slicer. ;-) Now every single time I open the metal top I get a cloth and use that to grab the metal part. 99% of the time it works perfectly, it also gives you a good grip so the metal piece is less likely to break off. Shelly 43 I know exactly what you mean about...

I am a "former" finger slicer. ;-) Now every single time I open the metal top I get a cloth and use that to grab the metal part. 99% of the time it works perfectly, it also gives you a good grip so the metal piece is less likely to break off. Shelly 43 I know exactly what you mean about...

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Hi Tom, I am so sorry your son is having such a rough time. This disease takes such a toll on every family member, and it is so hard to see your child suffering. My prayers are with Micah. My son is almost 15. When he was 12 he was hospitalized with liver failure. That was his first...

Hi Tom, I am so sorry your son is having such a rough time. This disease takes such a toll on every family member, and it is so hard to see your child suffering. My prayers are with Micah. My son is almost 15. When he was 12 he was hospitalized with liver failure. That was his first...

Add frappes made with Haagen Dazs ice cream and whole milk to your meals. Haagen Dazs is the most fattening ice cream I could find. If you make a frappe with 1 cup ice cream and 1 cup whole milk you'll be getting about 37 grams of fat and 12 grams of protein in just that frappe. My son has...

Add frappes made with Haagen Dazs ice cream and whole milk to your meals. Haagen Dazs is the most fattening ice cream I could find. If you make a frappe with 1 cup ice cream and 1 cup whole milk you'll be getting about 37 grams of fat and 12 grams of protein in just that frappe. My son has...

We have been dealing with this for 3 plus years now. My son started missing a lot of school in 6th grade, he is now in 9th. What I found during middle school was that the cycle of being absent, making up work , being absent again, being tested on material you were never taught because you were...

We have been dealing with this for 3 plus years now. My son started missing a lot of school in 6th grade, he is now in 9th. What I found during middle school was that the cycle of being absent, making up work , being absent again, being tested on material you were never taught because you were...

Hi, The vest is great. It frees up your time so much and as your daughter gets older she'll appreciate being able to do it when "she" wants and not when it is scheduled. It will give her some flexibility and control. I am in Mass as well, I am not sure where you go for CF care but we used to...

Hi, The vest is great. It frees up your time so much and as your daughter gets older she'll appreciate being able to do it when "she" wants and not when it is scheduled. It will give her some flexibility and control. I am in Mass as well, I am not sure where you go for CF care but we used to...

My 14 y.o. son has had several sinus surgeries and they have occurred in spurts. He would have one, we'd see improvement and then when he would have symptoms again we'd try another surgery. His last surgery which was his 4th in 18 months they put the baby shampoo in his sinus during the...

My 14 y.o. son has had several sinus surgeries and they have occurred in spurts. He would have one, we'd see improvement and then when he would have symptoms again we'd try another surgery. His last surgery which was his 4th in 18 months they put the baby shampoo in his sinus during the...

My 14 y.o. son has had several sinus surgeries and they have occurred in spurts. He would have one, we'd see improvement and then when he would have symptoms again we'd try another surgery. His last surgery which was his 4th in 18 months they put the baby shampoo in his sinus during the...