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    kalydeco

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    Tobi/ eFlow/trio?

    My son has recently started on the inhaled tobi. I have read that there is a nebulizer called the eflow or the trio that dramatically reduces treatment time. I know Foundation Care pharmacy offers this to their customers on Tobi but my insurance won't let me use them. I just asked Curascript...
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    Cayston/ Tobi

    My son who is 13 cultured pseudomonas for the first time. They tried him on the tobi and after the third dose he felt like his air ways closed up and he couldn't breath. Almost like asthma but he has never had any asthma like symptoms before. We stopped the tobi and were switched to cayston...
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    School Absences

    Hi, My son is an 8th grader and he misses a lot of school. So far this year it has been 23 days, last year totaled 87, and about 50 the year before. His absences are erratic. He might feel fine one day and then have a terrible cough for 3 days and then be back to school only to be out again...
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    Dry, Unproductive Cough

    I am wondering if anyone else experiences this. My son age 13 has this dry unproductive cough and once it starts it is really hard to stop. He has always had a post nasal drip cough, sometimes worse than others, but the past 2 years his cough has really interfered with his life, missing school...
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    Seven Letters That Changed My Life

    I know this topic was started but I have had trouble replying to the topic. Anyway I wanted to respond because I loved this book and I highly recommend reading it. I found this to be a motivational book that anyone CF or non CF would appreciate. Dottie basically tells you a bit about the...
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