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  1. M

    Pseudomonas?

    Well I got a bad call today from Camerons doctor....he has now cultured pseudomonas for the first time. He is actually sounding really good....like the best he has sounded in a while. No wheezing or coughing. No runny nose...nothing! So now we are going to do Cipro and Tobi. What else do we do...
  2. M

    Serratia Liquisaciens?

    Has anyone cultured serratia liquisaciens? I can't find any information about it anywhere. My 10 month old has and this is only the second thing he has cultured. The first was h flu(?) and then a week later this. They are putting him on Cepro and Tobi. Thanks for any advice or help with this.
  3. M

    Serratia Liquisaciens?

    Has anyone cultured serratia liquisaciens? I can't find any information about it anywhere. My 10 month old has and this is only the second thing he has cultured. The first was h flu(?) and then a week latert this. They are putting him on Cepro and Tobi. Thanks for any advice or help with this.
  4. M

    Breathing Treatments?

    Moms or dads....at what age were your kids put on any kind of breathing treatments? My son is almost 7 months and is only on enzymes, salt, vitamins, antiacids, and cpt twice a day for 15 mins. Is there anything else he should be on? I want to be proactive in his treatments but dont know if...
  5. M

    Antibiotics????

    Ok so my 6 month old son with cf had a bronchoscope done last monday (a week ago). It was all clear. He had been sick for over 2 months. They had tried 2 different antibiotics for the cold he had. He was really congested, cough, and sometimes would run a low fever. Well the week before this...
  6. M

    Disability?

    My 5 month old son was diagnosed at 1 month old after having a sweat test done. They had found one mutation in his newborn screening prompting the docs to do a sweat test. My family urged me to apply for disability for him which I did. He was denied. I was just wandering if kids just don't get...
  7. M

    Ok...having an issue here...

    So I've looked everywhere. I am trying to get more infomation on the gene mutation 2307insA. I can't find anything anywhere. This mutation was found in my 5 month old sons newborn screening. He was then diagnosed at 1 month with a positive sweat test. We haven't did further testing to find the...
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