Search results

First, sorry for the TMI aspect of this post, but it's the only way I know to explain what's been going on..... My son is 3 and half. About four weeks ago, he began experiencing periods of upset stomach during the night. He has these episodes 2-3 times per week. He will wake up in the middle...

Hello, Our 3-year-old son was diagnosed with CF through newborn screening. He has DF508/DF508 mutations. He has been doing chest CPT since diagnosis (recently switched to the vest, twice a day for 30 minutes each day) and pulmozyme since 1 year of age. At our clinic they mentioned beginning...

My son has just turned three and uses a pari sidestream nebulizer cub set to take his hypersal. He uses a small size child mask, which we accidentally warped to the point we can't use it. Of course, we are on vacation when this happened. Any ideas about how we can get a replacement within a day...

<br>Hello, My 30-month-old son has been having some sinus issues for the past three months.  He has daily nasal drip (sometimes clear, sometimes green) and it sounds like his sinuses are stuffy--especially when he sleeps, he snores and snorts loudly throughout naps and throughout the night. ...

<br>Hello, My 30-month-old son has been having some sinus issues for the past three months.  He has daily nasal drip (sometimes clear, sometimes green) and it sounds like his sinuses are stuffy--especially when he sleeps, he snores and snorts loudly throughout naps and throughout the night. ...

Hello all, We are having a really difficult time doing cpt with Aidan, our active 21-month-old. We've tried getting him to watch DVDs he enjoys during treatments, singing, numerous things. It's a huge battle and wrestling match 3 times a day. When I asked about getting the vest at our last...

"Grandma" comes over every Sunday afternoon for a weekly visit and stays at our home all afternoon--which is great. The problem is, now that cold and flu season is here, she has arrived ready to visit even when she is sick (states that she has been sick for several days and coughs throughout...

Hello, My son, Aidan, was diagnosed with CF at three weeks of age and is now 16 months old. He was hospitalized at 7 months due to bronchitis, had IV antibiotics for two weeks, and quickly got well. He sometimes has a dry cough, but other than this, no lung symptoms. We do CPT twice a day...

Hello, My son, Aidan, now age 15 months, was diagnosed with CF via newborn screening. He struggled with weight gain a great deal during his first six months, usually hanging around weight-for-length percentile of about 15% or so. During the second half of his first year, his weight-for-length...

Dear fellow CF families, I wanted to say "thank you" to folks who responded to my post about six weeks concerning my son, 14 months old at the time, who was having difficulty gaining weight. Aidan is also allergic to dairy and soy, and we were struggling getting his weight up and his team was...

Hello, I just need to ask other parents: do you ever dread going to your child's clinic appointments? My 14-month-old son has been having trouble gaining weight, and his treatment team keep mentioning the g-tube. We have clinic next Wed., and I just keep thinking about it and dread going. I...

Hello, My 14-month-old son, who was diagnosed with CF at 3 weeks of age, has been having weight issues from the start. For the past several months, he has been at the 25% percentile for weight and the 50% percentile for height. His CF center treatment team keeps mentioning that they think he...

My 4-month-old son's primary care pediatrician recommended that our son receive the Synergist shot for RSV prevention during the fall/winter months this year; however, we have just learned that our insurance will not pay for the shot (and it will cost us $500.00 per shot if we self-pay). I...

Hello, My son was born on May 21, 2009, and diagnosed at three weeks of age with CF. He is having a great deal of trouble gaining weight and it looks like he might be getting a feeding tube soon. I am so worried about his future and feel so alone right now. If I'm having trouble dealing with...

I have a four month old son diagnosed with CF at one month. We are looking at child care options--in-home care, day-care, etc. I am worried about an infant with CF being in day-care, esp. during the flu/cold season this fall and winter. Am I being over-protective or germophobic? Any advice...