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It depends upon the test. There are almost 3000 known mutations. If your husband was tested for anything less than the Full Cystic Fibrosis Sequencing then he would have an incomplete answer. The first that test that is normally administered, because that is what the Insurance Company will...

Contact the LEGAL DEPARTMENT at the Cystic Fibrosis Foundation. www. ccf.org

Discuss this issue with your CF Team. You can also contact the Cystic Fibrosis Foundation at cff.org. Bill

I am 80 years of age and I have Cystic Fibrosis. I have been married for 57 years, and I have two College Degrees. I still do three treatments a day and have done so for my entire Cystic Fibrosis life. Often, when speaking with my Cystic Fibrosis Doctors, I remind them that I went to...

Welcome Asmith62

When I was diagnosed, two years before the gene was discovered, there was no genetic testing. The test base began at 32 mutations, a standard that remains in use today. The base has grown from 32 to nearly 3000 mutations. Over the years genetic testing has expanded therefore changed. It is...

The first test for CF is for 32 mutations. The second test is for 250 mutations. There are SEVERAL tests before you get to the top of the ladder. At the top of the ladder is a FULL CYSTIC FIFROSIS SCREENING, it is here that they test for all known mutations approximately 3000.

Are you suggesting that you have some hearing loss as a result of being on Trikafta?

You (family) need to be seen by a CF Specialist at an APPROVED CYSTIC FIBROSIS CLINIC. Go to CFF.org for your nearest clinic

Hello Ken

She should be seen by a CF SPECIALIST at an APPROVED CF CLINIC.

Excellent.

After being on TRIKAFTA for a few months, I had a red rash on my face and under my chin, I don't know if the two were related. I treated it with Hydrocortisone Valerate 0.2%. It cleared up in about five days.

Age 80 dx at age 47. I have had cataract surgery in both eyes. I had the same burning. I scrub my eyes with baby shampoo when I am in the shower and use eye drops upon occasion. This has cleared it up.

Good for him and good for you.

Ratotosk: How old is your son and how is he doing now?

David, I often think of you, stay well.

I am not a parent but I am 80 years old and obviously I have lived with CF for all of my life. I was dx at age 47 so of course I went untreated for all of that time. My parents, like you, had 4 children but only spread out over less than 5 years, I was the oldest. All of my siblings are...

Yes try CFF.org/ Compass