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i'm 14 , 4'9 and 75 pounds

hey amber my name is emily and i am 14 too ... my doctors are talking to me about a transplant .. and i am debating too ... i feel the exact same way you do ... especially cuz my sister got a transplant and rejected ... and now had a second transplant .. :-/ *sigh*

Hey kelly ... yeah i am going through the same thing you are .. they are talking about a transplant for me too .. its hard cuz i just saw my sister go through another transplant ... i was just admitted to the hospital a couple of days ago ... its good though because my sister is in the hospital...

hey guys sorry i haven't written in a while ... last time i tried to reply it wouldn't let me ... oh well .. anywayy ... jenn is doing alright ... there is talk going on about her moving out of ICU .. so that will be good ... she's throwing up a lot thats the only downer ... she's starting to...

clash ... i go to Children's Hospital (Boston) too ... what floor do you usually go on ? ... (even though the floors are different now) ... have you been in the new building yet ? it looks so different !

RE:Anyone whos had a transplant but is in rejection? I need to talk to someone who can understands what I'm going through! Hi Heather, I'm not going through what you are ... but my sister was ... she just got a second lung transplant ... and she is recovering now ... but my sister was going...

I think everyone in my grade knows i have cf .. they know because when i am in the hospital ... and when i'm absent a lot people wonder .. and i have a good relationship with my teachers and stuff .. so they tell they kids where i am and stuff when they have people sign a get well card ... i do...

Sorry guys ... i forgot to log in ... and i didn't mean to enter it twice =p

I want to thank all of you for your prayers ... they have worked ... this morning at 4:30 we got the call from the hospital that they had lungs for my sister ... i was so happy ... now we have to switch our prayers that she will be strong enough to get through it ... and recover ... i really...

Hey you guys .. i want to thank you for your support ... intheIMAGEofhim ... my sister had lymphoma in her lungs too .. they gave her chemo therapy ... i don't know how long ago it was .. but .. yeah ... thats how my sister was .. she was trying to go to college and she couldn't really go ...

Hi my name is Emily and i'm 14 with cf ... i havent' been on in a while ... been busy and stuff ... I just wanted to see if anyone else has gone through or is going through what i am right now ... heres whats going on ... My sister is 19 and has cf too ... about 4 years ago she got a lung...

thanks liza yeah my mom and i are really close . . . i have told her that i don't know what he expects and she tries to talk to him but he still just doesn't understand . i don't know . . . anywayy thanks for the help!

i take 4 ultrase mt 20 with meals and 2 with snacks

hi liza thanks for the advice. my mom actually has talked to my teacher. my mom works at the school too. they know my situation because my older sister w/ cf was in the school system. (now in college) my teacher shows he tries to understand but when i tell him i can't do it he makes me feel like...

sorry guys i forgot to write something . . . i was just wondering what you guys do when it is time for gym class . . . can you do it? i can almost like never do it! i feel so ashamed and like weak! i feel like my teacher doesn't understand too!

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hi tiffany i am 13 years old and i am 4'8 and 73 lbs. weight is a issue for me and i have a feeding tube and i try to eat high calorie snacks and food . . . obviously lol

i also have this problem . . . when i am home i am on nutrivent as my formula. i am in the hospital now and they don't have my formula so i am doing nutrin 1.5 as it turns out that has helped and i don't vomit my feed. so maybe it is your formula ?

i have a login name now nicolas it is CFgirlie so if you see that name it is me