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Kevin, I am also from Chicago(suburbs) and was not diagnosed until I was 54...3 yrs ago. They found Bronchiectasis with a CT scan and one marker of CF DF508. Due to my lack of insurance, my Pulmonologist did not do a full sequencing but suspects I have more. (the sweat test was normal)...

Kevin, I am also from Chicago(suburbs) and was not diagnosed until I was 54...3 yrs ago. They found Bronchiectasis with a CT scan and one marker of CF DF508. Due to my lack of insurance, my Pulmonologist did not do a full sequencing but suspects I have more. (the sweat test was normal)...

Medicare no longer will cover two boxes of Pulmozyme a month was told its "To expensive?" I had problems getting Pulmozyme because my Medicaid benefits took so long to be approved. Call or check online the Parmaceutical 'Genentec'. I only require 1 box a month but they have been provideing me...

Medicare no longer will cover two boxes of Pulmozyme a month was told its "To expensive?" I had problems getting Pulmozyme because my Medicaid benefits took so long to be approved. Call or check online the Parmaceutical 'Genentec'. I only require 1 box a month but they have been provideing me...

Thank you for all the responses. vivsmom, I take most of what you do and often more. The Tobi was not right for me. Very harsh and made me sicker. I am hoping to try nebulized Cayston as the IV form is what really knocks out an infection when I've been in the hospital. So far the people at...

Thank you for all the responses. vivsmom, I take most of what you do and often more. The Tobi was not right for me. Very harsh and made me sicker. I am hoping to try nebulized Cayston as the IV form is what really knocks out an infection when I've been in the hospital. So far the people at...

I am 56 diagnosed at 53 with Bronchiectasis and DF508. Since I have no insurance, they said any further blood testing to check further on the CF factor would be too costly. I have 4 kids...married for 35 yrs in June. My nephew was born with CF. He is 27 and awaiting his 2nd lung transplant. This...

I am 56 diagnosed at 53 with Bronchiectasis and DF508. Since I have no insurance, they said any further blood testing to check further on the CF factor would be too costly. I have 4 kids...married for 35 yrs in June. My nephew was born with CF. He is 27 and awaiting his 2nd lung transplant. This...