1st time meeting an adult Cf'er in Real Life

SARAHSARAH253

New member
As a parent of a child with CF I naturally grab a hold of any literature I can get my hands on relating to CF. When I see a program that mentions CF I record in on our DVR, and insist that it not be deleted. This summer our local news had a "Health Minute" and it was about laser teeth whitening. The man trying out the laser treatments was a man in his 60's. That man also had Cystic Fibrosis. I loved that two minutes of TV, because for two minutes CF didn't look so scary.

Well, today I got a new face in "Our Little World" to put with CF. I recently joined my sons PTA. Call me crazy my sons only 3, but I always think it's important to pay it forward. In our little world people do so much for him, and I like to give back where I can. That said....Today I was dropping of my 3 dozen cupcakes for "Monster Mash" tonight. I explained to the PTA President that I was sorry that I had missed last weeks meeting, and made a comment about how scary colds can be in our house because Johnny has CF. She was in amazement they had just had a discussion about my son this week. They had no idea I was his Mom. I thought that's weird...Why are you discussing my son. She went on tell me that the other lady that I had sat with weeks before also had CYSTIC FIBROSIS! My heart stopped I think I said a bad word...I thinking "Your f'ing kidding me". I had just waved hi to that same woman minutes before in the parking lot...there was no way that bouncy little blonde had cf. She said "YEP". I asked her to get her........So, in front of the school today I cried and another mom with CF hugged me. I can't express how amazing this is to me. I guess it is soooo true when you give you get so much more back in return.

I just had to share.......

Sarah,

Mommy to johnny 3w/cf...bailey 1 year no/cf
 

SARAHSARAH253

New member
As a parent of a child with CF I naturally grab a hold of any literature I can get my hands on relating to CF. When I see a program that mentions CF I record in on our DVR, and insist that it not be deleted. This summer our local news had a "Health Minute" and it was about laser teeth whitening. The man trying out the laser treatments was a man in his 60's. That man also had Cystic Fibrosis. I loved that two minutes of TV, because for two minutes CF didn't look so scary.

Well, today I got a new face in "Our Little World" to put with CF. I recently joined my sons PTA. Call me crazy my sons only 3, but I always think it's important to pay it forward. In our little world people do so much for him, and I like to give back where I can. That said....Today I was dropping of my 3 dozen cupcakes for "Monster Mash" tonight. I explained to the PTA President that I was sorry that I had missed last weeks meeting, and made a comment about how scary colds can be in our house because Johnny has CF. She was in amazement they had just had a discussion about my son this week. They had no idea I was his Mom. I thought that's weird...Why are you discussing my son. She went on tell me that the other lady that I had sat with weeks before also had CYSTIC FIBROSIS! My heart stopped I think I said a bad word...I thinking "Your f'ing kidding me". I had just waved hi to that same woman minutes before in the parking lot...there was no way that bouncy little blonde had cf. She said "YEP". I asked her to get her........So, in front of the school today I cried and another mom with CF hugged me. I can't express how amazing this is to me. I guess it is soooo true when you give you get so much more back in return.

I just had to share.......

Sarah,

Mommy to johnny 3w/cf...bailey 1 year no/cf
 

SARAHSARAH253

New member
As a parent of a child with CF I naturally grab a hold of any literature I can get my hands on relating to CF. When I see a program that mentions CF I record in on our DVR, and insist that it not be deleted. This summer our local news had a "Health Minute" and it was about laser teeth whitening. The man trying out the laser treatments was a man in his 60's. That man also had Cystic Fibrosis. I loved that two minutes of TV, because for two minutes CF didn't look so scary.
<br />
<br />Well, today I got a new face in "Our Little World" to put with CF. I recently joined my sons PTA. Call me crazy my sons only 3, but I always think it's important to pay it forward. In our little world people do so much for him, and I like to give back where I can. That said....Today I was dropping of my 3 dozen cupcakes for "Monster Mash" tonight. I explained to the PTA President that I was sorry that I had missed last weeks meeting, and made a comment about how scary colds can be in our house because Johnny has CF. She was in amazement they had just had a discussion about my son this week. They had no idea I was his Mom. I thought that's weird...Why are you discussing my son. She went on tell me that the other lady that I had sat with weeks before also had CYSTIC FIBROSIS! My heart stopped I think I said a bad word...I thinking "Your f'ing kidding me". I had just waved hi to that same woman minutes before in the parking lot...there was no way that bouncy little blonde had cf. She said "YEP". I asked her to get her........So, in front of the school today I cried and another mom with CF hugged me. I can't express how amazing this is to me. I guess it is soooo true when you give you get so much more back in return.
<br />
<br />I just had to share.......
<br />
<br />Sarah,
<br />
<br />Mommy to johnny 3w/cf...bailey 1 year no/cf
 
W

welshwitch

Guest
What a cool story! love when you can de-mystify CF in real life. Nowadays so many CFers look and act like everyone else--no one would ever guess I have it by meeting me! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

welshwitch

Guest
What a cool story! love when you can de-mystify CF in real life. Nowadays so many CFers look and act like everyone else--no one would ever guess I have it by meeting me! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

welshwitch

Guest
What a cool story! love when you can de-mystify CF in real life. Nowadays so many CFers look and act like everyone else--no one would ever guess I have it by meeting me! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
What a great story! Isn't it so much fun meeting another person with CF in real life? I'm so happy you got to meet someone else ...hooray!
 

rubyroselee

New member
What a great story! Isn't it so much fun meeting another person with CF in real life? I'm so happy you got to meet someone else ...hooray!
 

rubyroselee

New member
What a great story! Isn't it so much fun meeting another person with CF in real life? I'm so happy you got to meet someone else ...hooray!
 
M

Mommafirst

Guest
I have a few adult CF friends from my involvement with the CF Family Council at our hospital. They are very important people to me, and I've been so impressed with how willing each has been to help me understand my daughter's point of view in all this. I'm glad you met this woman, I hope you develop a friendship!!
 
M

Mommafirst

Guest
I have a few adult CF friends from my involvement with the CF Family Council at our hospital. They are very important people to me, and I've been so impressed with how willing each has been to help me understand my daughter's point of view in all this. I'm glad you met this woman, I hope you develop a friendship!!
 
M

Mommafirst

Guest
I have a few adult CF friends from my involvement with the CF Family Council at our hospital. They are very important people to me, and I've been so impressed with how willing each has been to help me understand my daughter's point of view in all this. I'm glad you met this woman, I hope you develop a friendship!!
 

theLostMiler

New member
I found out one of the bartenders at my favorite bar apparently has CF... I havent met him yet and I havent been in the bar when he was working.

I guess he smokes though, so he's dumb anyways.... but its always weird when I find out about a cf'er that lives near me lol
 

theLostMiler

New member
I found out one of the bartenders at my favorite bar apparently has CF... I havent met him yet and I havent been in the bar when he was working.

I guess he smokes though, so he's dumb anyways.... but its always weird when I find out about a cf'er that lives near me lol
 

theLostMiler

New member
I found out one of the bartenders at my favorite bar apparently has CF... I havent met him yet and I havent been in the bar when he was working.
<br />
<br />I guess he smokes though, so he's dumb anyways.... but its always weird when I find out about a cf'er that lives near me lol
 
W

windex125

Guest
theLostMilner - some of your posts crack me up, I can see you have a fun personality for sure. I think alot of us have a wit about us for sure. Pat-55/CF
 
W

windex125

Guest
theLostMilner - some of your posts crack me up, I can see you have a fun personality for sure. I think alot of us have a wit about us for sure. Pat-55/CF
 
W

windex125

Guest
theLostMilner - some of your posts crack me up, I can see you have a fun personality for sure. I think alot of us have a wit about us for sure. Pat-55/CF
 
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