21 month old having his sweat test done next week. what are your thought?

TLC30

New member
hello all.i posted this on diagnosed oops so put it on this one now.
i have never heard of cf before only when i statred reading up on it a few weeks ago. so im here for a litle help with ppl who know the condtion the best i cant trust what i read on the internet.
my boy was very poorly in hospital for 10 days with bronclitis at 5 months old.on the chet xray it showed up he also had a secondray infection.it waa awful we couldnt even hold him he was that poorly. anyway after that he was always ill constant cough cold weeze etc. til he ended bk in hopsital again with rsv he was in for 2 days that time.
he has been admitted a further 4 times now. so a year ago he got diagnosed with infant asthma (no testin) just from his symtoms and breathing difficutlys.
he has about 9 infections to date and 3 ear infections.
he also suffers with hayfever.
recently he got croup which left him poorly for 2 weeks.
now every time he falls ill he gets this awful barking cough and smeely breath he had a attack and then left weezing for 2 weeks. he gets put on anti biotics every time. he is also always tired .
he has runny smeely poop every napy but nothing i think out of ordinary?
and his weight is fine infact he hs always been a big lad relli apart from his birth weight.he currently weighs 28lbs. but they did say his height didnt match his weight.
anyway the test is orederd for next thurs he also had a chest xray and thankfully that is fine.
can he have cf even though he is thriving (as they say)
any help info appreciated thankyou xx
t xx
 

TLC30

New member
hello all.i posted this on diagnosed oops so put it on this one now.
i have never heard of cf before only when i statred reading up on it a few weeks ago. so im here for a litle help with ppl who know the condtion the best i cant trust what i read on the internet.
my boy was very poorly in hospital for 10 days with bronclitis at 5 months old.on the chet xray it showed up he also had a secondray infection.it waa awful we couldnt even hold him he was that poorly. anyway after that he was always ill constant cough cold weeze etc. til he ended bk in hopsital again with rsv he was in for 2 days that time.
he has been admitted a further 4 times now. so a year ago he got diagnosed with infant asthma (no testin) just from his symtoms and breathing difficutlys.
he has about 9 infections to date and 3 ear infections.
he also suffers with hayfever.
recently he got croup which left him poorly for 2 weeks.
now every time he falls ill he gets this awful barking cough and smeely breath he had a attack and then left weezing for 2 weeks. he gets put on anti biotics every time. he is also always tired .
he has runny smeely poop every napy but nothing i think out of ordinary?
and his weight is fine infact he hs always been a big lad relli apart from his birth weight.he currently weighs 28lbs. but they did say his height didnt match his weight.
anyway the test is orederd for next thurs he also had a chest xray and thankfully that is fine.
can he have cf even though he is thriving (as they say)
any help info appreciated thankyou xx
t xx
 

TLC30

New member
hello all.i posted this on diagnosed oops so put it on this one now.
<br /> i have never heard of cf before only when i statred reading up on it a few weeks ago. so im here for a litle help with ppl who know the condtion the best i cant trust what i read on the internet.
<br />my boy was very poorly in hospital for 10 days with bronclitis at 5 months old.on the chet xray it showed up he also had a secondray infection.it waa awful we couldnt even hold him he was that poorly. anyway after that he was always ill constant cough cold weeze etc. til he ended bk in hopsital again with rsv he was in for 2 days that time.
<br />he has been admitted a further 4 times now. so a year ago he got diagnosed with infant asthma (no testin) just from his symtoms and breathing difficutlys.
<br />he has about 9 infections to date and 3 ear infections.
<br />he also suffers with hayfever.
<br />recently he got croup which left him poorly for 2 weeks.
<br />now every time he falls ill he gets this awful barking cough and smeely breath he had a attack and then left weezing for 2 weeks. he gets put on anti biotics every time. he is also always tired .
<br />he has runny smeely poop every napy but nothing i think out of ordinary?
<br />and his weight is fine infact he hs always been a big lad relli apart from his birth weight.he currently weighs 28lbs. but they did say his height didnt match his weight.
<br />anyway the test is orederd for next thurs he also had a chest xray and thankfully that is fine.
<br />can he have cf even though he is thriving (as they say)
<br />any help info appreciated thankyou xx
<br />t xx
 

Ratatosk

Administrator
Staff member
I responded to your diagnosis post... But this is probably a more appropriate area -- more people should respond..
 

Ratatosk

Administrator
Staff member
I responded to your diagnosis post... But this is probably a more appropriate area -- more people should respond..
 

Ratatosk

Administrator
Staff member
I responded to your diagnosis post... But this is probably a more appropriate area -- more people should respond..
 

petnurse

New member
I will respond by saying most children with CF are diagnosed after multiple infections. My son is 22 months and was diagnosed via newborn screen. He is thriving too. His weight has always been 90th percentile + without adding supplements. He has been sick with respirator infections/ear infections, however, no more than his older brothers have. It is so crucial to be diagnosed young and get the therapy started early. Smelly poop can be caused by any things, but is also common in Cf since the have trouble digesting their food. Enzyme replacement will help with that if he does in fact have CF. Good luck to you, and I hope the sweat test brings you some answers. This site is wonderful for asking questions as a new mom!
 

petnurse

New member
I will respond by saying most children with CF are diagnosed after multiple infections. My son is 22 months and was diagnosed via newborn screen. He is thriving too. His weight has always been 90th percentile + without adding supplements. He has been sick with respirator infections/ear infections, however, no more than his older brothers have. It is so crucial to be diagnosed young and get the therapy started early. Smelly poop can be caused by any things, but is also common in Cf since the have trouble digesting their food. Enzyme replacement will help with that if he does in fact have CF. Good luck to you, and I hope the sweat test brings you some answers. This site is wonderful for asking questions as a new mom!
 

petnurse

New member
I will respond by saying most children with CF are diagnosed after multiple infections. My son is 22 months and was diagnosed via newborn screen. He is thriving too. His weight has always been 90th percentile + without adding supplements. He has been sick with respirator infections/ear infections, however, no more than his older brothers have. It is so crucial to be diagnosed young and get the therapy started early. Smelly poop can be caused by any things, but is also common in Cf since the have trouble digesting their food. Enzyme replacement will help with that if he does in fact have CF. Good luck to you, and I hope the sweat test brings you some answers. This site is wonderful for asking questions as a new mom!
 

TLC30

New member
thanks for your replys <img src="i/expressions/face-icon-small-smile.gif" border="0">
well his poop relli is bad sour smellin and mustard coulor. but he is on montekulast granules so could be that?
whe he his the sweat test what are the numbers?
as i see you all mentioning thm
so could you help me out with what means what?
thanks
t xx
 

TLC30

New member
thanks for your replys <img src="i/expressions/face-icon-small-smile.gif" border="0">
well his poop relli is bad sour smellin and mustard coulor. but he is on montekulast granules so could be that?
whe he his the sweat test what are the numbers?
as i see you all mentioning thm
so could you help me out with what means what?
thanks
t xx
 

TLC30

New member
thanks for your replys <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />well his poop relli is bad sour smellin and mustard coulor. but he is on montekulast granules so could be that?
<br />whe he his the sweat test what are the numbers?
<br />as i see you all mentioning thm
<br />so could you help me out with what means what?
<br />thanks
<br />t xx
 

petnurse

New member
I do not know what those granules are, but if you are breastfeeding, that can cause mustard stool...however, none of mine ever had that at 21 months old. A great place for info about the sweat test is here....<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/AboutCF/Testing/SweatTest/">CFF Sweat Test Info</a>http://www.cff.org/AboutCF/Testing/SweatTest/
 

petnurse

New member
I do not know what those granules are, but if you are breastfeeding, that can cause mustard stool...however, none of mine ever had that at 21 months old. A great place for info about the sweat test is here....<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/AboutCF/Testing/SweatTest/">CFF Sweat Test Info</a>http://www.cff.org/AboutCF/Testing/SweatTest/
 

petnurse

New member
I do not know what those granules are, but if you are breastfeeding, that can cause mustard stool...however, none of mine ever had that at 21 months old. A great place for info about the sweat test is here....<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/AboutCF/Testing/SweatTest/">CFF Sweat Test Info</a>http://www.cff.org/AboutCF/Testing/SweatTest/
 
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