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JennifersHope

New member
RE:Hospital Depression Anyone?

Hi Kelly,

I am in the hospital about every three to four months... I don't really get depressed in the hospital as much as I do anxious.... I hate being there.... I feel very out of control.. I feel powerless to every Tom,Rick ( APPARENTLY THEY THINK THE NAME THAT GOES BETWEEN TOM AND HARRY IS A BAD NAME.. THEY MADE ME EDIT IT HA) and Harry that walks in.... If housekeeping wants to wash the floors at 4 am they don't see anything wrong with it. I am also on mega... and I mean mega doses of steroids... which add to the anxiety.. I take zanex when I am in patient.. which helps somewhat..I THINK IF WE HAD A BETTER SENSE OF CONTROL THAT WOULD LESSON THE BLOW OF BEING IN THERE.

Last time I went in, I didn't even go to my CF clinics hospital because it is much worse there, They are a teaching hospital, so literally you never stop having a residnet, intern, med student, nursing student, nurse, RT etc in the room.. At least at my regular hospital where I work I feel a little more in control because my doctor protects me, he has even put signs on the door..without me knowing saying leave patient alone unless important.. Dont' talk to patient about school..., also ppl come to see me more, the people I work with come upstairs, I am real comfortable with my doctor... Peace of mind does a lot for me....However, this last hospital stay, I have no memory of being in the hospital..which is really horrible for me...I don't know why. they think maybe steroid psycosis... I really haven't addressed it fully yet...but everyone I talked to say I acted normal while I was there... anyway

What helps me and really truly is the only thing that gets me through the hospital stay.. and I am usually there close to two weeks.. is the people who call me or come to see me.. If I was left to myself.. I think I would go insane... but I have one friend that calls me several times a day, we don't talk long....but she just calls and says.. Who do you want to kill now or who can I beat up for you??.. Of course the ppl I am closest to..cant come see me when I am in the hospital because she has a low white blood count and it woudn't be wise..but I never feel her abscence because she makes it a point to talk to me every day.and I can call her and say anything and she can turn it around and have me cracking up laughing in a minute....Sometimes I have ppl who just make jokes and crack me up..

Many times ppl can't come see me like the same situation you and your husband are in.. Phone calls,, where you are not interupted help alot.... How about bringing books with you, or clay, or knitting.. They don't work for me because I can't concentrate at all on anything.. but I have heard some ppl do that...... OR internet service is a big way of staying connected.....also my dad always brings me stuff from home... my favorite drinks, snacks etc.. movies.. to watch..

Hoping you don't have to go in for a long time,

Jennifer

Jennifer
 

JennifersHope

New member
RE:Hospital Depression Anyone?

Hi Kelly,

I am in the hospital about every three to four months... I don't really get depressed in the hospital as much as I do anxious.... I hate being there.... I feel very out of control.. I feel powerless to every Tom,Rick ( APPARENTLY THEY THINK THE NAME THAT GOES BETWEEN TOM AND HARRY IS A BAD NAME.. THEY MADE ME EDIT IT HA) and Harry that walks in.... If housekeeping wants to wash the floors at 4 am they don't see anything wrong with it. I am also on mega... and I mean mega doses of steroids... which add to the anxiety.. I take zanex when I am in patient.. which helps somewhat..I THINK IF WE HAD A BETTER SENSE OF CONTROL THAT WOULD LESSON THE BLOW OF BEING IN THERE.

Last time I went in, I didn't even go to my CF clinics hospital because it is much worse there, They are a teaching hospital, so literally you never stop having a residnet, intern, med student, nursing student, nurse, RT etc in the room.. At least at my regular hospital where I work I feel a little more in control because my doctor protects me, he has even put signs on the door..without me knowing saying leave patient alone unless important.. Dont' talk to patient about school..., also ppl come to see me more, the people I work with come upstairs, I am real comfortable with my doctor... Peace of mind does a lot for me....However, this last hospital stay, I have no memory of being in the hospital..which is really horrible for me...I don't know why. they think maybe steroid psycosis... I really haven't addressed it fully yet...but everyone I talked to say I acted normal while I was there... anyway

What helps me and really truly is the only thing that gets me through the hospital stay.. and I am usually there close to two weeks.. is the people who call me or come to see me.. If I was left to myself.. I think I would go insane... but I have one friend that calls me several times a day, we don't talk long....but she just calls and says.. Who do you want to kill now or who can I beat up for you??.. Of course the ppl I am closest to..cant come see me when I am in the hospital because she has a low white blood count and it woudn't be wise..but I never feel her abscence because she makes it a point to talk to me every day.and I can call her and say anything and she can turn it around and have me cracking up laughing in a minute....Sometimes I have ppl who just make jokes and crack me up..

Many times ppl can't come see me like the same situation you and your husband are in.. Phone calls,, where you are not interupted help alot.... How about bringing books with you, or clay, or knitting.. They don't work for me because I can't concentrate at all on anything.. but I have heard some ppl do that...... OR internet service is a big way of staying connected.....also my dad always brings me stuff from home... my favorite drinks, snacks etc.. movies.. to watch..

Hoping you don't have to go in for a long time,

Jennifer

Jennifer
 

Kay

New member
RE:Hospital Depression Anyone?

Well I usually don't get too down about going into the hospital I get a little sad but nothing major. However this last time I completely lost it and wanted to jump out a window so I wouldn't have to deal with the situation or people. Sounds drastic I know, but when you go in for a tune up in December and they let you out just in time for Christmas and then you are back in there just after New Year's with a collapsed lung, then a week later have another collapsed lung (the same one of course) and then they tell you the infection in your lungs has gotten a little out of control and you will be on another tune up for a month you get a bit crazy.

I stayed in the hospital in December for the full 3 weeks I hardly ever do that, then I got to go home for 2 weeks for the second tune up, but had to stay in the hospital for the collapsed lungs obviously. I hate being in there, I go to Children's Hospital in Boston and it is a teaching hospital as well so it sucks big time. Everytime you think you have a moment of peace someone comes in to bug you about things you already know or really don't matter. Vital signs get very annoying after a few days esp. when they wake you up at 3am to take them. I think what helped me get through a lot of this though was my parents made sure that at least one person came in to see me each day...maybe not long visits but at least I got to see someone. My boyfriend could only really come and see me on the weekends as well and he usually stayed for a few hours then went back to school, it passed the day away. I read a lot, do school work, watch movies, get a computer and go online...anything to keep my mind busy. I also have a great relationship with most of the nurses they know when I am having a bad day. They won't bug me or they put a sign on my door so no one will come in. I was there so often this winter the cleaning lady even knew when to come in and when not to. Also my doctor is the BEST, I wouldn't have anyone else. He is the one who asks me how I am doing and tries to help make things a little easier. As far as the whole social worker thing goes I get super annoyed with them. You say you aren't happy and they just look at you like ya it must be hard...I want to be like don't sympathize with me you just tell me to go to a shrink. That issue has been coming up a lot for me lately because of this whole situation. I got everything thrown at me at once and all I could do was cry (which I NEVER do) and no one knew what was going through my head. I just couldn't put into words what I felt so yeah I know how you feel about not wanting to tell anyone anything.

Being in the hospital is the worst but if you can talk on the phone and have visitors who always like to bring in stuff <img src="i/expressions/face-icon-small-wink.gif" border="0"> that helps a whole lot. But the most important and I don't want to sound cheesy, but have a positive attitude. I get a lot of bad news dumped on me everytime I go in for an appointment or tune up and I just think well if you can make me better do it. Plus that way when something really does bug you everyone tires to fight to make it better just that much more!
 

Kay

New member
RE:Hospital Depression Anyone?

Well I usually don't get too down about going into the hospital I get a little sad but nothing major. However this last time I completely lost it and wanted to jump out a window so I wouldn't have to deal with the situation or people. Sounds drastic I know, but when you go in for a tune up in December and they let you out just in time for Christmas and then you are back in there just after New Year's with a collapsed lung, then a week later have another collapsed lung (the same one of course) and then they tell you the infection in your lungs has gotten a little out of control and you will be on another tune up for a month you get a bit crazy.

I stayed in the hospital in December for the full 3 weeks I hardly ever do that, then I got to go home for 2 weeks for the second tune up, but had to stay in the hospital for the collapsed lungs obviously. I hate being in there, I go to Children's Hospital in Boston and it is a teaching hospital as well so it sucks big time. Everytime you think you have a moment of peace someone comes in to bug you about things you already know or really don't matter. Vital signs get very annoying after a few days esp. when they wake you up at 3am to take them. I think what helped me get through a lot of this though was my parents made sure that at least one person came in to see me each day...maybe not long visits but at least I got to see someone. My boyfriend could only really come and see me on the weekends as well and he usually stayed for a few hours then went back to school, it passed the day away. I read a lot, do school work, watch movies, get a computer and go online...anything to keep my mind busy. I also have a great relationship with most of the nurses they know when I am having a bad day. They won't bug me or they put a sign on my door so no one will come in. I was there so often this winter the cleaning lady even knew when to come in and when not to. Also my doctor is the BEST, I wouldn't have anyone else. He is the one who asks me how I am doing and tries to help make things a little easier. As far as the whole social worker thing goes I get super annoyed with them. You say you aren't happy and they just look at you like ya it must be hard...I want to be like don't sympathize with me you just tell me to go to a shrink. That issue has been coming up a lot for me lately because of this whole situation. I got everything thrown at me at once and all I could do was cry (which I NEVER do) and no one knew what was going through my head. I just couldn't put into words what I felt so yeah I know how you feel about not wanting to tell anyone anything.

Being in the hospital is the worst but if you can talk on the phone and have visitors who always like to bring in stuff <img src="i/expressions/face-icon-small-wink.gif" border="0"> that helps a whole lot. But the most important and I don't want to sound cheesy, but have a positive attitude. I get a lot of bad news dumped on me everytime I go in for an appointment or tune up and I just think well if you can make me better do it. Plus that way when something really does bug you everyone tires to fight to make it better just that much more!
 

anonymous

New member
RE:Hospital Depression Anyone?

I go off the deep end everytime I have to go in the hospital- I even had to drop out of college for a semester because I was so sick & stressed out. Thats the problem- Im so stressed about going in- I put it off and put it off until Im too sick and land myself in the ICU. They finally put me on prozac to calm my nerves I think it helps, also when bad times come up they gave me atarax, which is good for anxiety. I was scared to ask for help with this anxiety issue because it was one more thing to deal with, but I go to a therapist every month and it really does help. When I went to Boston to look into lung transplants the CF doctor told me just about everyone with CF (she encounters) is on some type of med. for anxiety/depression. I think its all part of the game and its good to get help for it.




Amy
21.cf.cfrd
 

anonymous

New member
RE:Hospital Depression Anyone?

I go off the deep end everytime I have to go in the hospital- I even had to drop out of college for a semester because I was so sick & stressed out. Thats the problem- Im so stressed about going in- I put it off and put it off until Im too sick and land myself in the ICU. They finally put me on prozac to calm my nerves I think it helps, also when bad times come up they gave me atarax, which is good for anxiety. I was scared to ask for help with this anxiety issue because it was one more thing to deal with, but I go to a therapist every month and it really does help. When I went to Boston to look into lung transplants the CF doctor told me just about everyone with CF (she encounters) is on some type of med. for anxiety/depression. I think its all part of the game and its good to get help for it.




Amy
21.cf.cfrd
 

JazzysMom

New member
RE:Hospital Depression Anyone?

When I go into the hospital I feel like I am in another world & all by myself. I get phone calls yes. My hubby/daughter visit on the weekends because we are too far away to come during the week. Last year I was fortunate to have a new, fabulous neighbor who moved up to me from the city so she was familiar with my hospital etc & came down to see me a few times. My oldest sis made a point of coming to see me. It really helped out. I had a really rough year both physically & emotionally, but since a kid I kind of "winged" it on my own. Its nothing new to be on my own their. For some reason tho as I get older I dislike it more & more. I become more needy. Its almost like I have had enough of being the "brave/strong" one & its my time to ask for help!
 

JazzysMom

New member
RE:Hospital Depression Anyone?

When I go into the hospital I feel like I am in another world & all by myself. I get phone calls yes. My hubby/daughter visit on the weekends because we are too far away to come during the week. Last year I was fortunate to have a new, fabulous neighbor who moved up to me from the city so she was familiar with my hospital etc & came down to see me a few times. My oldest sis made a point of coming to see me. It really helped out. I had a really rough year both physically & emotionally, but since a kid I kind of "winged" it on my own. Its nothing new to be on my own their. For some reason tho as I get older I dislike it more & more. I become more needy. Its almost like I have had enough of being the "brave/strong" one & its my time to ask for help!
 
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