I have heard alot about this 504 plan here on the site in the past few days/weeks. What is it??? Our litttle guy w/ CF will be starting school in the next couple weeks, is this something we should set up for him? Any information on the topic would be wonderful. Including how to go about setting it up. Thanks
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504...What is it?
- Thread starter anonymous
- Start date
I am going into my son's school tomorrow to set up his 504 plan - so I probaly will know a lot more tomorrow. But here is what I know...Basically a 504 plan is a law that mandates that schools can not discriminate against students with medical needs. By law, schools are required to accomodate any special needs a child might have. A 504 plan is a written "plan" that is drafted by the child's parents, teachers, principals, school nurses etc. and includes anything a child with medical needs might require in his or her daily life at school as well as anything a child might require in predicted circumstances (ie. hospitalizations, etc.) For children with CF, you can make certain requests in order to safe guard your child and make sure his or her school experience is comfortable, productive, happy, and HEALTHY.There are two such plans a family can choose. I talked very briefly about this with Sean's school nurse. Basically the difference is that the other choice is for children with more needs. It is a more formal plan and has more specific requirments. Please, somebody correct me if I am wrong, but I believe this plan is more for children who have developmental delays or for children whose illness would force them to miss a lot of school.Because Sean's health is still good and he is very active and meeting all his developmental milestones, we are setting up a 504 plan. The way I see it is that is a "formal" way of making sure I can still protect Sean while he is out of my care. For example, I am going to request that Sean be allowed to keep his enzymes in the classroom (locked up, of course) so that his teacher can give them to him. I feel strongly about this b/c I do not want Sean having to walk to the office every day where sick kids might be waiting to be picked up by their parents - also I do not want him having to leave the classroom everytime and draw attention to himself. I am also going to ask for unlimited potty breaks and a water bottle to be kept near his desk. As much as it is going to drive me crazy, I am not going to ask for the world and do not want too many limitations be placed on Sean. I really feel that it is important for him to be as normal as possible. The school told me that everything I request (and they agree to), they must follow by law. If you want, I will be happy to share with you what I learn tomorrow. Also, if anyone has any more advice and/or input, I would greatly appreciate it. As I mentioned, I am setting mine up tomorrow morning. Katrina -- mother to Sean (5) with CF and starting K in 2 days, Carolyn (almost 4) w/o cf, and Allison (2) w/o cf
Hi, I just recieved My "CF in the Classroom from the CF Pharmacy and it says that: an IEP covers kids with learning disabilities as well as Other Health Impairments (including CF) but that it only covers kids in public schools and that most of the administrators mistakenly believe that it is ONLY for thoses with Learning Disabilites. a 504 offers the same protection to anyone in a school that recieves any federal funding (Most schools even private one recieve some federal funding) And if a public school refuses to comply for the IEP then this can be used in it's place. Either way parents meet with teachers, the school nurse, and administrators to develop a plan with the needed modifications for the child.ie: unlimited bathroom privlages tutoring after 3 missed days second set of textbooks.................You can probably get this book from the people who put it together. www.cfri.org or the ones who "made it possible" www.digestivecare.com And No I haven't set one up yet but will be discussing it with the school soon I think!Andrea
My daughter just graduated from high school (she had a 504 plan in place) and my younger daughter is entering her sophomore year with a 504 in place for a different disease (Von Willebrand's Disease), but they use the same 504 set up. Basically, it's a plan you set up with school administration, teachers, nurse, etc. to make sure that all of your child's needs are met. It worked (and still is working) perfectly for us.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Hi -- Our school calls it something else but my one daughter has it and the other doesnt. After reading these thoughts, I thank you because I had not thought of all of the ideas that you all have come up with. My personal favorite is that the children are entitled to an air conditioner in their classrooms. The teachers in our school (& the students too) love having my girls because they get an air conditioner in their classroom. Last year, I did have trouble with the meds in the classroom. My school made it seem like it was up to the individual teacher. Thanks. Deb (mom of three, two w/cf)
A 504 plan is. Part of the rehabilitation Act of 1973enforced by the office of Civil RightsA 504 plan is intended to prevent discrimination of people with disabilities.It is a legal binding document that list the accommondations the child needs to receive in order to have equal educational opportunities.For more information or assistanceUS Office of Civil Rights: 1-800-421-3481 orsection 504 website: www.ed.gov/offices/OCR/disability.htmlI have a child with CF ,she is 18, she has had a 504 since 9th grade , I wishedthat i had known sooner. I hope this information will help you.
Hi my name is Jamie and my son has cf. I've been trying talk with different families and find out as much as I can about cf, and things I need to do to help my son. He's only 5 months old. I found you by just searching on the computer, and some how I got to this 504. I'm really new with cf and trying to find out different ways to help our lives. I have not been able to really talk with someone other than our cf dr. and thats it. So if you could please e-mail me and maybe we can talk a little about cf. Thank you so much!!Jamie