A question for Sean.D

anonymous

New member
Hi Sean, i have a question regarding probiotics. On another post you mention, that you have done some heavy reading up on probiotic supplementation. Which has benefits for people with CF.

I was wondereing if it was called (TOTAL IMMUNE BOOSTER). If not have alook at the site www.health-reports.com, and let me know what you think.
That's only if you want to.

Thanks Eli (i still can't log in, i can't figure it out)
 

anonymous

New member
I havn't heard of toatal immune booster, i might also look it up for myself and see what benefits it might have for us.
 

Faust

New member
Well I haven't done a TON of research on probiotics, but I did some, and from what I read, the general feeling is that if you have heavy normal (not the bad stuff, the good stuff) flora in your system (bacteria), it competes for the same real estate that the bad flora (pseudo, staph, etc) competes for also, and then makes it much harder for bacteria to settle within you because "someone is already living there" so to speak. As an example, I was taking probiotics for a while because I wasn't sure if the heavy oregano oil dosing was going to lead in a reduction in my natural good flora in my system. Thankfully it didn't impact it, and now I have "heavy normal flora" in my system. Now it could have been due to the oregano oil, coincidence, or could have been largely due to the probiotic use, but now I have "very light" cultures of pseudo and staph. I had never been very very heavy with pseudo in the past to my knowledge, but I don't ever recall being classified very light either.


Aside from that good reason to use probiotics CF wise, there is also the aspect that we are learning new things almost daily on what the good bacteria do for us. Some actually make vitamins for us, some maintain and regulate a proper metabolism, and others assist in hormone regulation. You should think of the good bacteria as your bodies little helpers, or "Dozers" like from the old Fraggle Rock show. Always in the background toiling away at helping your body.

When you take broad spectrum antibiotics (which is what most of what us CF's take to treat our disease) it kills off these helpful bacteria along with the bad bacteria, so it leads to further health instability and basically damages our entire bodies ecosystem, like submerging a coral reef in gasoline.

In the human colon alone, there is over two pounds (the weight) of bacteria (a thought that is staggering), some good, some bad like E. Coli etc that you wouldn't want to get into the rest of your system. Since so many CF's take prophalactic antibiotics (like tobi), it's a good idea to take probiotic supplements to keep our bodies natural ecosystem healthy, and continue to gain the benefits from the good bacteria.

And the first premise I mentioned with probiotics does make logical sense. If all bacteria generally use the same principles to attach and thrive within your system, if there is very limited real estate to attach and thrive due to it being way too crowded with your good bacteria, then it forces the bad bacteria to not have a place to take up shop so to speak.


I always knew about the benefits of probiotics as in maintaining a good ecosystem, but I never gave any thought to the real estate and overcrowding your body with good bacteria principle. Makes perfectly good sense to me.
 

Faust

New member
BTW if you are interested in a good read, I posted this link a while back discussing bacteria, good and bad, and why the principle behind broad spectrum antibiotics is a very bad idea in general:

(very good read if you want to educate yourself on the matter, which is one of the large reasons why I am against casual antibiotic use)

<a target=_blank class=ftalternatingbarlinklarge href="http://www.discover.com/issues/nov-05/features/are-antibiotics-killing/
">http://www.discover.com/issues...-antibiotics-killing/
</a>

Also google up probiotic information to learn more, ton of info out there.
 

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

FABULOUS information, Sean. You explain it well, too.



What should we be eating in order to get probiotics?</end quote></div>

Theres several foods with higher than normal presence of good bacteria, yogurt probably being the most notable. But in our case due to different bad bugs always trying to infect us or already infecting us, I think we need much higher levels than what's found in even the foods with the highest content, and as such I recommend CF's take a good probiotic supplement. Normal people could do fine just eating a daily yogurt (especially women) or whatever, but we are a special case, so look into a good supplement.
 

Faust

New member
In general, any foods that are fermented in some form are always good sources for our good bacteria. Kimche (I love it and eat it whenever I find some), saur kraut, yogurt (not fermented in the normal sense, but the process produces the bacteria), and anything similar to that. I watched a documentary not long ago on the benefits of some fermented foods, and it gave me a meanon for probiotics <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i>

SD-

Can you recommend a good probiotic supplement?</end quote></div>


I personally don't have a preference...Whatever is relatively cheap with a good name brand that has many good strains and high quantity represented is good. GNC and any good health food store will stear you towards some good brands. I can't remember the brand I was taking, but I believe I got it at GNC at the time. I only recommend places like GNC for grabbing stuff ya need right away, or using them for lite information, and then I buy off the internet cause it's always cheaper.
 

Faust

New member
Here is what I was taking:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nowfoods.com/?action=itemdetail&item_id=10908
">http://www.nowfoods.com/?actio...mdetail&item_id=10908
</a>

Still have some left over, and plan on taking some regularly soon.
 

Faust

New member
Here are some other good probiotic products. I buy most of my non specialized supplements from this company. Very cheap, high quality, vast selection, and fast shipping.


<a target=_blank class=ftalternatingbarlinklarge href="http://www.vitacost.com/productResults.aspx?Ntt=probiotic&Ntk=products&ss=1&x=0&y=0
">http://www.vitacost.com/produc...products&ss=1&x=0&y=0
</a>
 

EnergyGal

New member
I would like to make a comment to those who may be afraid of taking immune boosters. With this product that you are mentioning it contains allicin which comes from garlic. This in itself does raise T cells which helps the body to boost its own immunity. With most good probiotics, all they contain are the beneficial bacteria that is needed to help you maintain a healthy ecosystem within your intestinal tract. That is why I can take a probiotic without it effecting my immune system because I had a transplant. I was given a probiotic in the ICU by Jarrow. I was impressed with my transplant team. I read all labels on any probiotic that is out there. Many do contain immune boosting agents that directly target B and T cells. Which for me is a not smart.

I know this is off topic but just in case someone who is transplanted is reading this do not worry as long as you are not adding allicin or a product similar to this to your diet. The term immune boosting, I feel is not adequately described in many articles. There are plenty of healthy foods that can help you stay healthy however you are not raising your t cells directly when eating healthy or popping vitamins. When keeping your intestinal tract clean you are keeping your immune system stronger-could say you are helping to boost it but you are not raising the t cell count directly. Today I am concerned when I see something that says helps to boost your immune system as a source of trouble for me. When I do some research I can determine what they really mean.
 

EnergyGal

New member
Thank you Sean- I am going to buy this when I run out of my supply. It is very similar to Jarrow. I like switching brands only if the company is in high standing.
 

anonymous

New member
I use the Jarrow Formula, a product called Jarro-Dopholis + FOS powder. It has 12 billion per gram/serving. Just mix it with water and down it-

It really helps me- I don't take it everyday but every other day, unless I am on antibiotics then its everyday.
 

Faust

New member
Yeah sorry for not pointing that out. Any advice I give supplement wise should always be looked at as not including either very young children and especially not including post or very pre transplant patients. I don't like to give either of those types supplement advice due to how sticky their situations are, and me not knowing much about all the massive requirements pre and post transplant patients need to pay attention to.
 

Imogene

Administrator
Sean:

You may consider using our new blog option. Then you can make sure of the disclaimers and add all of your great links and references and research you've done without repeating yourself.

Sean's Supplement Blog?

Jeanne
 

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Imogene</b></i>

Sean:



You may consider using our new blog option. Then you can make sure of the disclaimers and add all of your great links and references and research you've done without repeating yourself.



Sean's Supplement Blog?



Jeanne</end quote></div>


Sean's Guinea Pig Blog?
 

Tom

New member
Probiotics have been studied in infants with CF. The researchers found that probiotic supplementation reduced intestinal inflammation.

Intestinal inflammation can cause malabsorption and leaky gut syndrome (not good).

The researchers used Lactobacillus rhamnosus GG. This bacteria is in the brand called Culturelle.

My son's GI doc recommended this brand to us.

Here is the study abstract in case anyone is interested.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15379842&query_hl=2&itool=pubmed_docsum
">http://www.ncbi.nlm.nih.gov/en...2&itool=pubmed_docsum
</a>
Tom
 
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