A study about CF by a CFer

S

serendipity730

New member
Hi,
I am a regular to this forum, and I am working on my masters thesis in genetic counseling. I wanted to do something with CF, since it interests me most. So, I have chosen to do a survey about whether or not parents who have a child diagnosed with CF decide to have more children or not. I realize this is a very private matter, but I would appreciate anyone who would be will to share this infomation with me when I have completed by prep work. So, what I am asking now is for parents to please e mail me at mar_md@yahoo.com if they would be willing to participate. Thanks so much, I really appreciate it!
 
A

anonymous

New member
I have a son, Nathan, who is 4 years old without CF. My daughter Hayley, who will be 1 in a few weeks has CF. We went through one miscarriage and a full term pregnancy that ended with our son dying of Potter's Syndrome prior to Nathan's birth (a very rare disease in which he was born without kidneys), he died 3 hours after birth.

I had my tubes tied after my C-Section with Hayley's birth, as we had decided not to tempt fate again. So we really aren't able to have more children and are satisfied with just two. But, had Hayley been my first born child I would have decided to have at least one more child, regardless of the risk that they would also have CF. I can't imagine my life without Hayley, I can only dream for her to have a life without CF (with a cure for CF!).

My sister, however, recently did the blood test and found out that she is a carrier for CF, her fiancee will now have the test and they have decided that they will not have children if he is also a carrier. I think it is a very personal decision for everyone. Hope that helps you! Feel free to e-mail me at Quaintancer15@msn.com if I can help you with anymore questions.

Becky
 
S

shamrock

New member
My mom had two kids before me without cf, then she had me with cf and then she had my sister without cf. I am the statistic 1 in 4!
 
S

spicyone18

New member
I too have two older sisters and a younger sister all CF free. My oldest sister isnt even a carrier and the 2nd to oldest is a carrier and my younger sister we dont know yet.
 
L

LilStrawberyShortness

New member
<img src="i/expressions/face-icon-small-confused.gif" border="0"> im the only one with cf..but we have differant dads..that might do something..(i only have one brother..didnt mean to make it sound like a baby producing store)
 
You must log in or register to reply here.
Top