minimedic304
New member
I see tons of posts about the story abc news did about cf patients living longer. I am the featured Cf patient in the story. I was very disappointed in several aspects of that story. When ABC contacted me they had not decided which way the story would go...they asked me to share my story which I did. The main focus was supposed to be about CF patients living longer, and possibly the high costs related to the disease. I had no idea CFF was being featured in it, and they story was also supposed to focus on my foundation which was put together to help pay for patients costs, but there was no mention of it other than a link and the CFF all over it. I am also very disappointed with that median age of 37. I have heard of way to many patients dying at a much younger age.....So this is my plug for my foundation. www.breathe-easy.org
My focus is to help patients, first in Florida where I live and as we grow, all over the united states. The ideas and programs and research we are looking to do...will change the quality of life for patients all over. In a very short time my foundations word is out especially in Florida to several CF centers...Jacksonville, Orlando, Tampa, and Shortly southern florida......however our biggest problem is funding.....this is not a request for donations.....but I want everyone to be aware that this foundation is on a roll, and I will not stop until all my goals are fulfilled..... My foundation right now works on a all volunteer basis, with several dedicated cf patients and cf family members working everyday. With all the work that is involved I will have to hire full time people but hopefully by then we will have other income aside from donations, so that all donations we do receive will go 100% towards patients.
Again just check us out www.breathe-easy.org
My focus is to help patients, first in Florida where I live and as we grow, all over the united states. The ideas and programs and research we are looking to do...will change the quality of life for patients all over. In a very short time my foundations word is out especially in Florida to several CF centers...Jacksonville, Orlando, Tampa, and Shortly southern florida......however our biggest problem is funding.....this is not a request for donations.....but I want everyone to be aware that this foundation is on a roll, and I will not stop until all my goals are fulfilled..... My foundation right now works on a all volunteer basis, with several dedicated cf patients and cf family members working everyday. With all the work that is involved I will have to hire full time people but hopefully by then we will have other income aside from donations, so that all donations we do receive will go 100% towards patients.
Again just check us out www.breathe-easy.org