We weren't able to get insurance to pay, but we did put word out to our family. So often people are asking what can they do, how can they help, etc. I asked my parents to send out an email stating that my son's health would GREATLY be helped if we could afford to buy a tempurpedic adjustable bed. She asked for small donations and was able to come up with enough put together to pay for the bed plus fancy sheet set to go with it. It's AMAZING as my son is comfortable, we can raise or lower the head of the bed for those rough nights of coughing/drainage/etc. It has been wonderful. Our accountant said we could possibly write off the purchase as a medical expense with a letter from our doctor, but we've not decided on that yet. I'm afraid it would cause us to be audited.
For years, we put the head of my son's bed on wooden blocks to keep it slightly elevated, but the ability to raise and lower the bed has helped so very much more.