Advice Please

C

charl72

New member
Our daughter has got an end of term party in Playgroup this week. She has been attending for almost the last year for 2 hours each morning and has really enjoyed it. Each morning the children have a snack, right from the start I told the lady that runs the Playgroup that our daughter has CF. To keep things simple, because they have fruit and water for their snack I told her not to complicate things she would be fine to have these without enzymes. None of the other mums know at the moment that our daughter has CF because I didn't feel ready to tell them and also feel that there was no need for them to know. At the party there will obviously be party food so our daughter will need her enzymes. I get the feeling that people might ask questions, etc, who knows though?! Any advice because I don't feel ready to talk about it.

When our daughter starts Nursery this September, we are going to take enzymes for the teacher to give her as it is a more organised environment. The reason we didn't feel happy for them to give our daughter enzymes in Playgroup was because a lot of the mums are involved in the rota and we didn't want them giving our daughter enzymes.

Any advice?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

charl72

New member
Our daughter has got an end of term party in Playgroup this week. She has been attending for almost the last year for 2 hours each morning and has really enjoyed it. Each morning the children have a snack, right from the start I told the lady that runs the Playgroup that our daughter has CF. To keep things simple, because they have fruit and water for their snack I told her not to complicate things she would be fine to have these without enzymes. None of the other mums know at the moment that our daughter has CF because I didn't feel ready to tell them and also feel that there was no need for them to know. At the party there will obviously be party food so our daughter will need her enzymes. I get the feeling that people might ask questions, etc, who knows though?! Any advice because I don't feel ready to talk about it.

When our daughter starts Nursery this September, we are going to take enzymes for the teacher to give her as it is a more organised environment. The reason we didn't feel happy for them to give our daughter enzymes in Playgroup was because a lot of the mums are involved in the rota and we didn't want them giving our daughter enzymes.

Any advice?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

charl72

New member
Our daughter has got an end of term party in Playgroup this week. She has been attending for almost the last year for 2 hours each morning and has really enjoyed it. Each morning the children have a snack, right from the start I told the lady that runs the Playgroup that our daughter has CF. To keep things simple, because they have fruit and water for their snack I told her not to complicate things she would be fine to have these without enzymes. None of the other mums know at the moment that our daughter has CF because I didn't feel ready to tell them and also feel that there was no need for them to know. At the party there will obviously be party food so our daughter will need her enzymes. I get the feeling that people might ask questions, etc, who knows though?! Any advice because I don't feel ready to talk about it.

When our daughter starts Nursery this September, we are going to take enzymes for the teacher to give her as it is a more organised environment. The reason we didn't feel happy for them to give our daughter enzymes in Playgroup was because a lot of the mums are involved in the rota and we didn't want them giving our daughter enzymes.

Any advice?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

charl72

New member
Our daughter has got an end of term party in Playgroup this week. She has been attending for almost the last year for 2 hours each morning and has really enjoyed it. Each morning the children have a snack, right from the start I told the lady that runs the Playgroup that our daughter has CF. To keep things simple, because they have fruit and water for their snack I told her not to complicate things she would be fine to have these without enzymes. None of the other mums know at the moment that our daughter has CF because I didn't feel ready to tell them and also feel that there was no need for them to know. At the party there will obviously be party food so our daughter will need her enzymes. I get the feeling that people might ask questions, etc, who knows though?! Any advice because I don't feel ready to talk about it.

When our daughter starts Nursery this September, we are going to take enzymes for the teacher to give her as it is a more organised environment. The reason we didn't feel happy for them to give our daughter enzymes in Playgroup was because a lot of the mums are involved in the rota and we didn't want them giving our daughter enzymes.

Any advice?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

charl72

New member
Our daughter has got an end of term party in Playgroup this week. She has been attending for almost the last year for 2 hours each morning and has really enjoyed it. Each morning the children have a snack, right from the start I told the lady that runs the Playgroup that our daughter has CF. To keep things simple, because they have fruit and water for their snack I told her not to complicate things she would be fine to have these without enzymes. None of the other mums know at the moment that our daughter has CF because I didn't feel ready to tell them and also feel that there was no need for them to know. At the party there will obviously be party food so our daughter will need her enzymes. I get the feeling that people might ask questions, etc, who knows though?! Any advice because I don't feel ready to talk about it.

When our daughter starts Nursery this September, we are going to take enzymes for the teacher to give her as it is a more organised environment. The reason we didn't feel happy for them to give our daughter enzymes in Playgroup was because a lot of the mums are involved in the rota and we didn't want them giving our daughter enzymes.

Any advice?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
C

charl72

New member
Our daughter has got an end of term party in Playgroup this week. She has been attending for almost the last year for 2 hours each morning and has really enjoyed it. Each morning the children have a snack, right from the start I told the lady that runs the Playgroup that our daughter has CF. To keep things simple, because they have fruit and water for their snack I told her not to complicate things she would be fine to have these without enzymes. None of the other mums know at the moment that our daughter has CF because I didn't feel ready to tell them and also feel that there was no need for them to know. At the party there will obviously be party food so our daughter will need her enzymes. I get the feeling that people might ask questions, etc, who knows though?! Any advice because I don't feel ready to talk about it.

When our daughter starts Nursery this September, we are going to take enzymes for the teacher to give her as it is a more organised environment. The reason we didn't feel happy for them to give our daughter enzymes in Playgroup was because a lot of the mums are involved in the rota and we didn't want them giving our daughter enzymes.

Any advice?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 
R

Rebjane

Super Moderator
My advice may not be what you want to hear but I if it was my daughter I would want her to participate in the year-end party and have the fun party foods so of course she'ld need her enzymes. I would either attend the party so I could give the enzymes to her or have an adult be responsible for giving the enzymes. If any adults had questions I would just say my daughter has CF(cystic fibrosis) and she needs these to digest her food., period. Sometimes, this opens the door to a wonderful and eye-opening conversation for both parties, sometimes not. I'm not sure what rota is or concerns you have about the other parents or children. Not everyone is open with their CF but our family is. I've had very few weird/negative experiences for the most part people are very sweet. Nobody feels sorry for my daughter;(that I 'm aware of). It's a hard step, I've had some friends look incredulous, some shed tears when I say she has CF but I remain positive/hopeful and most people return that attitude back towards my daughter. I would not want my daughter to hide or go to the bathroom to take her enzymes because I would not want her to feel ashamed or that she needed to hide her CF. Usually most people/children follow your lead. And honestly children are the easiest anyway, they won't see anything different about your daughter.
 
R

Rebjane

Super Moderator
My advice may not be what you want to hear but I if it was my daughter I would want her to participate in the year-end party and have the fun party foods so of course she'ld need her enzymes. I would either attend the party so I could give the enzymes to her or have an adult be responsible for giving the enzymes. If any adults had questions I would just say my daughter has CF(cystic fibrosis) and she needs these to digest her food., period. Sometimes, this opens the door to a wonderful and eye-opening conversation for both parties, sometimes not. I'm not sure what rota is or concerns you have about the other parents or children. Not everyone is open with their CF but our family is. I've had very few weird/negative experiences for the most part people are very sweet. Nobody feels sorry for my daughter;(that I 'm aware of). It's a hard step, I've had some friends look incredulous, some shed tears when I say she has CF but I remain positive/hopeful and most people return that attitude back towards my daughter. I would not want my daughter to hide or go to the bathroom to take her enzymes because I would not want her to feel ashamed or that she needed to hide her CF. Usually most people/children follow your lead. And honestly children are the easiest anyway, they won't see anything different about your daughter.
 
R

Rebjane

Super Moderator
My advice may not be what you want to hear but I if it was my daughter I would want her to participate in the year-end party and have the fun party foods so of course she'ld need her enzymes. I would either attend the party so I could give the enzymes to her or have an adult be responsible for giving the enzymes. If any adults had questions I would just say my daughter has CF(cystic fibrosis) and she needs these to digest her food., period. Sometimes, this opens the door to a wonderful and eye-opening conversation for both parties, sometimes not. I'm not sure what rota is or concerns you have about the other parents or children. Not everyone is open with their CF but our family is. I've had very few weird/negative experiences for the most part people are very sweet. Nobody feels sorry for my daughter;(that I 'm aware of). It's a hard step, I've had some friends look incredulous, some shed tears when I say she has CF but I remain positive/hopeful and most people return that attitude back towards my daughter. I would not want my daughter to hide or go to the bathroom to take her enzymes because I would not want her to feel ashamed or that she needed to hide her CF. Usually most people/children follow your lead. And honestly children are the easiest anyway, they won't see anything different about your daughter.
 
R

Rebjane

Super Moderator
My advice may not be what you want to hear but I if it was my daughter I would want her to participate in the year-end party and have the fun party foods so of course she'ld need her enzymes. I would either attend the party so I could give the enzymes to her or have an adult be responsible for giving the enzymes. If any adults had questions I would just say my daughter has CF(cystic fibrosis) and she needs these to digest her food., period. Sometimes, this opens the door to a wonderful and eye-opening conversation for both parties, sometimes not. I'm not sure what rota is or concerns you have about the other parents or children. Not everyone is open with their CF but our family is. I've had very few weird/negative experiences for the most part people are very sweet. Nobody feels sorry for my daughter;(that I 'm aware of). It's a hard step, I've had some friends look incredulous, some shed tears when I say she has CF but I remain positive/hopeful and most people return that attitude back towards my daughter. I would not want my daughter to hide or go to the bathroom to take her enzymes because I would not want her to feel ashamed or that she needed to hide her CF. Usually most people/children follow your lead. And honestly children are the easiest anyway, they won't see anything different about your daughter.
 
R

Rebjane

Super Moderator
My advice may not be what you want to hear but I if it was my daughter I would want her to participate in the year-end party and have the fun party foods so of course she'ld need her enzymes. I would either attend the party so I could give the enzymes to her or have an adult be responsible for giving the enzymes. If any adults had questions I would just say my daughter has CF(cystic fibrosis) and she needs these to digest her food., period. Sometimes, this opens the door to a wonderful and eye-opening conversation for both parties, sometimes not. I'm not sure what rota is or concerns you have about the other parents or children. Not everyone is open with their CF but our family is. I've had very few weird/negative experiences for the most part people are very sweet. Nobody feels sorry for my daughter;(that I 'm aware of). It's a hard step, I've had some friends look incredulous, some shed tears when I say she has CF but I remain positive/hopeful and most people return that attitude back towards my daughter. I would not want my daughter to hide or go to the bathroom to take her enzymes because I would not want her to feel ashamed or that she needed to hide her CF. Usually most people/children follow your lead. And honestly children are the easiest anyway, they won't see anything different about your daughter.
 
R

Rebjane

Super Moderator
My advice may not be what you want to hear but I if it was my daughter I would want her to participate in the year-end party and have the fun party foods so of course she'ld need her enzymes. I would either attend the party so I could give the enzymes to her or have an adult be responsible for giving the enzymes. If any adults had questions I would just say my daughter has CF(cystic fibrosis) and she needs these to digest her food., period. Sometimes, this opens the door to a wonderful and eye-opening conversation for both parties, sometimes not. I'm not sure what rota is or concerns you have about the other parents or children. Not everyone is open with their CF but our family is. I've had very few weird/negative experiences for the most part people are very sweet. Nobody feels sorry for my daughter;(that I 'm aware of). It's a hard step, I've had some friends look incredulous, some shed tears when I say she has CF but I remain positive/hopeful and most people return that attitude back towards my daughter. I would not want my daughter to hide or go to the bathroom to take her enzymes because I would not want her to feel ashamed or that she needed to hide her CF. Usually most people/children follow your lead. And honestly children are the easiest anyway, they won't see anything different about your daughter.
 
S

sdelorenzo

Guest
Seems like I am having to ask lots of people lately to give my kids enzymes. I guess that just happens when they go to day camps, vacation bible school, birthday parties, etc without me. Nobody seems to mind much and they are happy to help. I am not sure if you are going to be at the end of term party, but when I give my kids enzymes at parties, nobody seems to notice. I am very open about my kids having cf, so if someone would ask me why I they take medicine I just explain that they have cystic fibrosis and they need enzyme to help digest their food. If they want to continue the conversation, great and if not, the conversation just ends there. Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Seems like I am having to ask lots of people lately to give my kids enzymes. I guess that just happens when they go to day camps, vacation bible school, birthday parties, etc without me. Nobody seems to mind much and they are happy to help. I am not sure if you are going to be at the end of term party, but when I give my kids enzymes at parties, nobody seems to notice. I am very open about my kids having cf, so if someone would ask me why I they take medicine I just explain that they have cystic fibrosis and they need enzyme to help digest their food. If they want to continue the conversation, great and if not, the conversation just ends there. Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Seems like I am having to ask lots of people lately to give my kids enzymes. I guess that just happens when they go to day camps, vacation bible school, birthday parties, etc without me. Nobody seems to mind much and they are happy to help. I am not sure if you are going to be at the end of term party, but when I give my kids enzymes at parties, nobody seems to notice. I am very open about my kids having cf, so if someone would ask me why I they take medicine I just explain that they have cystic fibrosis and they need enzyme to help digest their food. If they want to continue the conversation, great and if not, the conversation just ends there. Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Seems like I am having to ask lots of people lately to give my kids enzymes. I guess that just happens when they go to day camps, vacation bible school, birthday parties, etc without me. Nobody seems to mind much and they are happy to help. I am not sure if you are going to be at the end of term party, but when I give my kids enzymes at parties, nobody seems to notice. I am very open about my kids having cf, so if someone would ask me why I they take medicine I just explain that they have cystic fibrosis and they need enzyme to help digest their food. If they want to continue the conversation, great and if not, the conversation just ends there. Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Seems like I am having to ask lots of people lately to give my kids enzymes. I guess that just happens when they go to day camps, vacation bible school, birthday parties, etc without me. Nobody seems to mind much and they are happy to help. I am not sure if you are going to be at the end of term party, but when I give my kids enzymes at parties, nobody seems to notice. I am very open about my kids having cf, so if someone would ask me why I they take medicine I just explain that they have cystic fibrosis and they need enzyme to help digest their food. If they want to continue the conversation, great and if not, the conversation just ends there. Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
Seems like I am having to ask lots of people lately to give my kids enzymes. I guess that just happens when they go to day camps, vacation bible school, birthday parties, etc without me. Nobody seems to mind much and they are happy to help. I am not sure if you are going to be at the end of term party, but when I give my kids enzymes at parties, nobody seems to notice. I am very open about my kids having cf, so if someone would ask me why I they take medicine I just explain that they have cystic fibrosis and they need enzyme to help digest their food. If they want to continue the conversation, great and if not, the conversation just ends there. Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
R

Ratatosk

Administrator
Staff member
DS went to a party last winter at the gymnastics academy -- was two hours long -- started with cake and then they had activities for the kids. Was a milestone for us because parents were to leave the kids and pick them up. I worried about the enzyme issue and finally when we got to the gym, I gave him 3 enzymes and washed it down with a drink. And he was fine. I there any way you can give her the enzymes before hand? Otherwise, I wouldn't worry about it. The kids are going to be so busy, no-one is going to notice.
 
R

Ratatosk

Administrator
Staff member
DS went to a party last winter at the gymnastics academy -- was two hours long -- started with cake and then they had activities for the kids. Was a milestone for us because parents were to leave the kids and pick them up. I worried about the enzyme issue and finally when we got to the gym, I gave him 3 enzymes and washed it down with a drink. And he was fine. I there any way you can give her the enzymes before hand? Otherwise, I wouldn't worry about it. The kids are going to be so busy, no-one is going to notice.
 
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