sarabeth87
New member
I found this site probably about 2 years ago. Before that I was in denial that I even had CF. I was on oral antibiotics all the time. I've been on Tobi for about 4 years and I have been on pulmozyme since it came out and Albuterol for just about my whole life. Well anyways, one day I was on the net and decided to see of a cysticfibrosis.com existed. Then lo and behold, it did. I found the forums and posted as anon for a while. It was the first time I ever talked to anyone else with CF, besides my brother. I thought my life was horrible, then I met people on here my age and younger who were on transplant list and had transplants, or had already died. It was then I realized how serious CF is, and I became an advocate for my health. Before then, doctor visits were a joke to me and a waste of my precious time, just like all the treatments I took. Well, i did everything i was suppose to for a while, then about 6 months ago, I stopped. That went on for a while. I got pretty sick in April and ran a fever for a few days and just felt like crap, then I went to the doc and my PFTs had went from 90% to 80% in only 3 months. Needless to say, I started back doing everything and I haven't missed one thing since then, and I don't plan to again. Just being a part of this CF community makes me want to live and be as healthy as I possibly can.