Angie mom of Brady 4yrs.

[anonymous]

I read that he cultured psued. at 2 months old and he is 4 now. Can you tell me a little about how he has done and what the treatment he got or had? My daughter has been very healthy. She was diagnosed with it through the New York State Newborn Screening. She had the RSV virus but her lungs stayed clear. That was back in the end of Feb. and last week she cultured psued. Thanks....
Katina
mom of Saydee 8 months w/cf
Keriona 3yrs. wo/cf
Ethan 8yrs. wo/cf

 

[anonymous]

Katina:

Actually Brady has done well lung wise, he has had alot more bowel problems than the lung. He has had 2 hospitalizations for strictly the clean-outs, he has been hospitalized other times too, but only 2 clean-outs. The clean-outs he had--the first took 10 days and the 2nd took 3 weeks (21 days). He does get the 4 breathing treatments a day, and maybe the pseudo so early is why he has 4 a day. I know when I found out he had the pseudo that early I was really scared, he hadn't even been home from the hospital yet when he got it at 2 months of age. I really can't remember what they put him on at that time. I hope all is well with your family!

Angie

Mom

of Brittany (step-daughter) 13 without CF
Tyler- 11 year old without CF (cf carrier)
Brady - 4 with cf
Taylor 2- without CF, but has deletion of Chromosome 9q 21.1 q 22.2