My older sister has a Supervisor whose son has CF. I have never met either of them, but feel like they are my family. My sister has kept me up to date on how Brian (the son) has been doing since he was very sick & went through transplant rejection, pneumonia after receiving lobes from living donors, being unconcious for a month etc. Brian always seemed to have another life like a cat. In addition to my sister being amazed his own father was. I always told my sister that CF patients have a strength & stubborness that cant be matched. Sadly Brian lost the fight on Friday. His obituary was in our local paper today & it was very touching. It talked of how his strength & stubborness that endured for so long was an inspiration to his family and friends. Although his physical being will be missed his strong spirit will remain. I want to go to his funeral services, but feel funny in a way. I realize that his Dad (Scott) probably wouldnt feel the way I think he would & might even be grateful that I took the time to go. What is everyone's input? Remember I have never actually met them, but my sister & Scott swapped stories about Brian & I all the time especially since my problems started this year.
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Another Angel was Gained
- Thread starter JazzysMom
- Start date
J
jennaxox
Guest
sorry to hear about your loss, you should go to the funeral anyways. im very sure that his father would appreciate and respect you a lot more for showing up and paying your last resepects. if you don't mind me asking when was he diagnosed and how old was he?
Emily65Roses
New member
I would go. I've said before that if I know of a CFer death near me, even if I didn't know them, I'd likely go to the wake. I feel like all CFers are family. I went to one girl's wake who I used to be friends with, but hadn't seen since she was like 7. She died at 21. So that was a pretty big gap. I don't think it'll hurt anything to go. They may find it kind that you would care enough to go for a boy you never met.
I can only imagine that this family would feel honored that you wanted to be there and actually showed up. I feel like we (because of my husband, as I am not the one with CF) belong to a family and I would do just what I am suggesting to you. If the roles were reversed, and something happened to my husband, I would be forever grateful for all the CFers in our area who came out of the woodwork to be there and show their support. I really think you should go.
Julie (wife to Mark 24 w/CF)
Julie (wife to Mark 24 w/CF)
My son, Matt, recently passed away after receiving a double lung transplant. Many, many people came to the funeral home to pay their respects including people that Matt and myself had never met. These people were either friends or relatives of people that we did know and I was overwhelmed at the support each and every one of them showed to our family. I wouldn't even think twice about going to pay your respect, the family will appreciate it, I'm sure.
Sandy
Sandy
I always try to think of reversing the roles in these kind of situations. How would you feel if they showed up to support you and your family. In a way you're already connected and from here you could gain some really great and supportive friends that want to be involved with your family.
To Jennaxox--Brian was diagnosed at birth, but was always a severe case. He was 22 when he died & had been through soooooooooooooo much in the last 2 years. During the month he was unconcious & on life support, his Dad was about to decide to pull the plug & Brian woke up long enough for his Dad to ask if he wanted to continue the fight. Brian was very sure that he was not done fighting yet & he lapsed back into unconciousness for another week. His whole transplant story is amazing.
To Everyone else--I have decided to go to the wake. I thought about when my Dad & nephew died & how people we hadnt seen in forever or never met came to sure their support. I would want that for my family! Thanks for your input!
To Everyone else--I have decided to go to the wake. I thought about when my Dad & nephew died & how people we hadnt seen in forever or never met came to sure their support. I would want that for my family! Thanks for your input!