Any advice...

N

nichi874

New member
I don't know how to start this off. My name is Nicole and my boyfriend has CF. He is 27 years old and has known about it all his life. We've been together for almost a year now and I went into the relationship knowing that he had CF and I did a lot of research before hand. I have a lot of questions though. He is currently not very happy with his Doctor. We live in Michigan and are looking for a different doctor than the people in Grand Rapids. Any suggestions? Also, I would like any advice on how I can help him. I kind of feel helpless even though he tells me all the time that I do enough for him. I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me. The last time he went into the hospital for his "tune up" as he calls them, his ex-wife found a new boyfriend. Good for me, bad for him! So can anyone give me some advice and suggest a good Michigan based doctor?

Thanks,
Nicole
 
N

nichi874

New member
I don't know how to start this off. My name is Nicole and my boyfriend has CF. He is 27 years old and has known about it all his life. We've been together for almost a year now and I went into the relationship knowing that he had CF and I did a lot of research before hand. I have a lot of questions though. He is currently not very happy with his Doctor. We live in Michigan and are looking for a different doctor than the people in Grand Rapids. Any suggestions? Also, I would like any advice on how I can help him. I kind of feel helpless even though he tells me all the time that I do enough for him. I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me. The last time he went into the hospital for his "tune up" as he calls them, his ex-wife found a new boyfriend. Good for me, bad for him! So can anyone give me some advice and suggest a good Michigan based doctor?

Thanks,
Nicole
 
N

nichi874

New member
I don't know how to start this off. My name is Nicole and my boyfriend has CF. He is 27 years old and has known about it all his life. We've been together for almost a year now and I went into the relationship knowing that he had CF and I did a lot of research before hand. I have a lot of questions though. He is currently not very happy with his Doctor. We live in Michigan and are looking for a different doctor than the people in Grand Rapids. Any suggestions? Also, I would like any advice on how I can help him. I kind of feel helpless even though he tells me all the time that I do enough for him. I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me. The last time he went into the hospital for his "tune up" as he calls them, his ex-wife found a new boyfriend. Good for me, bad for him! So can anyone give me some advice and suggest a good Michigan based doctor?

Thanks,
Nicole
 
N

nichi874

New member
I don't know how to start this off. My name is Nicole and my boyfriend has CF. He is 27 years old and has known about it all his life. We've been together for almost a year now and I went into the relationship knowing that he had CF and I did a lot of research before hand. I have a lot of questions though. He is currently not very happy with his Doctor. We live in Michigan and are looking for a different doctor than the people in Grand Rapids. Any suggestions? Also, I would like any advice on how I can help him. I kind of feel helpless even though he tells me all the time that I do enough for him. I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me. The last time he went into the hospital for his "tune up" as he calls them, his ex-wife found a new boyfriend. Good for me, bad for him! So can anyone give me some advice and suggest a good Michigan based doctor?

Thanks,
Nicole
 
N

nichi874

New member
I don't know how to start this off. My name is Nicole and my boyfriend has CF. He is 27 years old and has known about it all his life. We've been together for almost a year now and I went into the relationship knowing that he had CF and I did a lot of research before hand. I have a lot of questions though. He is currently not very happy with his Doctor. We live in Michigan and are looking for a different doctor than the people in Grand Rapids. Any suggestions? Also, I would like any advice on how I can help him. I kind of feel helpless even though he tells me all the time that I do enough for him. I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me. The last time he went into the hospital for his "tune up" as he calls them, his ex-wife found a new boyfriend. Good for me, bad for him! So can anyone give me some advice and suggest a good Michigan based doctor?
<br />
<br />Thanks,
<br />Nicole
 
T

TonyaH

Guest
Dr. ***** Simon and University of Michigan...The BEST adult CF specialist in the state, and I would argue one of the best in the country.

Kuddos to you for taking an active role in your boyfriend's CF!
 
T

TonyaH

Guest
Dr. ***** Simon and University of Michigan...The BEST adult CF specialist in the state, and I would argue one of the best in the country.

Kuddos to you for taking an active role in your boyfriend's CF!
 
T

TonyaH

Guest
Dr. ***** Simon and University of Michigan...The BEST adult CF specialist in the state, and I would argue one of the best in the country.

Kuddos to you for taking an active role in your boyfriend's CF!
 
T

TonyaH

Guest
Dr. ***** Simon and University of Michigan...The BEST adult CF specialist in the state, and I would argue one of the best in the country.

Kuddos to you for taking an active role in your boyfriend's CF!
 
T

TonyaH

Guest
Dr. ***** Simon and University of Michigan...The BEST adult CF specialist in the state, and I would argue one of the best in the country.
<br />
<br />Kuddos to you for taking an active role in your boyfriend's CF!
 
T

Terry

Guest
"I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me."


I can't offer the advice you sought because I am in Maryland, but I wanted to say I love your character! It takes a special person to see past this disease, and speaking from the point of view of a parent of a child with CF who worries about their future happiness, I am glad there are people like you in the world.

Good Luck to you and your BF!

Terry
 
T

Terry

Guest
"I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me."


I can't offer the advice you sought because I am in Maryland, but I wanted to say I love your character! It takes a special person to see past this disease, and speaking from the point of view of a parent of a child with CF who worries about their future happiness, I am glad there are people like you in the world.

Good Luck to you and your BF!

Terry
 
T

Terry

Guest
"I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me."


I can't offer the advice you sought because I am in Maryland, but I wanted to say I love your character! It takes a special person to see past this disease, and speaking from the point of view of a parent of a child with CF who worries about their future happiness, I am glad there are people like you in the world.

Good Luck to you and your BF!

Terry
 
T

Terry

Guest
"I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me."


I can't offer the advice you sought because I am in Maryland, but I wanted to say I love your character! It takes a special person to see past this disease, and speaking from the point of view of a parent of a child with CF who worries about their future happiness, I am glad there are people like you in the world.

Good Luck to you and your BF!

Terry
 
T

Terry

Guest
"I just want to be supportive and I want him to know that it's going to take a lot more than cystic fibrosis to get rid of me."
<br />
<br />
<br />I can't offer the advice you sought because I am in Maryland, but I wanted to say I love your character! It takes a special person to see past this disease, and speaking from the point of view of a parent of a child with CF who worries about their future happiness, I am glad there are people like you in the world.
<br />
<br />Good Luck to you and your BF!
<br />
<br />Terry
 
B

blondelawyer

New member
I am not from Michigan, so I don't have suggestions there, but do encourage him to find a doctor that he trusts, even if that means being followed by a clinic that he trusts...we have had lots of clinic issues, and they are not fun!

I can better address your other concerns (maybe anyway), as I have been married to a guy with CF for 9 years. Learning about CF is a great thing to do. I have actually learned SO much from the site that my husband didn't even know. So, I educate him (and his doctors sometimes) about new treatments, research, etc. Obviously whether you do that or not will depend on your BF, but getting all of the information that you can for yourself is great and also shows your BF that you care and are involved. Along with that, I would try to go to clinic appointments with him if possible and he wants you to and be there when he is in the hospital (again if it is possible). You being a parnter in his care is important.

Really, the best piece of advice I can give you is to ask your BF specific questions about what he wants you to do and what can be helpful for him, etc. He may just dismiss it like you said and say 'You do enough', but I think that eventually they can start to talk about the things. Probably he hasn't really thought a lot about what he would ideally want you to do, etc. A lot of this is just going to come with time and figuring out what works and what doesn't. Each situation is different. Above all you just have to tell him (and show him) that you love him and are there no matter what. Being constant and a person he can depend on is key I think. It really does take some time to figure out things that work and don't--we are still figuring that out somewhat.

Anyway, I am getting long-winded and not sure I am even making sense, so I will stop! Please feel free to PM me or email me if you have any questions or want to chat, etc.

Take care,

Lisa
 
B

blondelawyer

New member
I am not from Michigan, so I don't have suggestions there, but do encourage him to find a doctor that he trusts, even if that means being followed by a clinic that he trusts...we have had lots of clinic issues, and they are not fun!

I can better address your other concerns (maybe anyway), as I have been married to a guy with CF for 9 years. Learning about CF is a great thing to do. I have actually learned SO much from the site that my husband didn't even know. So, I educate him (and his doctors sometimes) about new treatments, research, etc. Obviously whether you do that or not will depend on your BF, but getting all of the information that you can for yourself is great and also shows your BF that you care and are involved. Along with that, I would try to go to clinic appointments with him if possible and he wants you to and be there when he is in the hospital (again if it is possible). You being a parnter in his care is important.

Really, the best piece of advice I can give you is to ask your BF specific questions about what he wants you to do and what can be helpful for him, etc. He may just dismiss it like you said and say 'You do enough', but I think that eventually they can start to talk about the things. Probably he hasn't really thought a lot about what he would ideally want you to do, etc. A lot of this is just going to come with time and figuring out what works and what doesn't. Each situation is different. Above all you just have to tell him (and show him) that you love him and are there no matter what. Being constant and a person he can depend on is key I think. It really does take some time to figure out things that work and don't--we are still figuring that out somewhat.

Anyway, I am getting long-winded and not sure I am even making sense, so I will stop! Please feel free to PM me or email me if you have any questions or want to chat, etc.

Take care,

Lisa
 
B

blondelawyer

New member
I am not from Michigan, so I don't have suggestions there, but do encourage him to find a doctor that he trusts, even if that means being followed by a clinic that he trusts...we have had lots of clinic issues, and they are not fun!

I can better address your other concerns (maybe anyway), as I have been married to a guy with CF for 9 years. Learning about CF is a great thing to do. I have actually learned SO much from the site that my husband didn't even know. So, I educate him (and his doctors sometimes) about new treatments, research, etc. Obviously whether you do that or not will depend on your BF, but getting all of the information that you can for yourself is great and also shows your BF that you care and are involved. Along with that, I would try to go to clinic appointments with him if possible and he wants you to and be there when he is in the hospital (again if it is possible). You being a parnter in his care is important.

Really, the best piece of advice I can give you is to ask your BF specific questions about what he wants you to do and what can be helpful for him, etc. He may just dismiss it like you said and say 'You do enough', but I think that eventually they can start to talk about the things. Probably he hasn't really thought a lot about what he would ideally want you to do, etc. A lot of this is just going to come with time and figuring out what works and what doesn't. Each situation is different. Above all you just have to tell him (and show him) that you love him and are there no matter what. Being constant and a person he can depend on is key I think. It really does take some time to figure out things that work and don't--we are still figuring that out somewhat.

Anyway, I am getting long-winded and not sure I am even making sense, so I will stop! Please feel free to PM me or email me if you have any questions or want to chat, etc.

Take care,

Lisa
 
B

blondelawyer

New member
I am not from Michigan, so I don't have suggestions there, but do encourage him to find a doctor that he trusts, even if that means being followed by a clinic that he trusts...we have had lots of clinic issues, and they are not fun!

I can better address your other concerns (maybe anyway), as I have been married to a guy with CF for 9 years. Learning about CF is a great thing to do. I have actually learned SO much from the site that my husband didn't even know. So, I educate him (and his doctors sometimes) about new treatments, research, etc. Obviously whether you do that or not will depend on your BF, but getting all of the information that you can for yourself is great and also shows your BF that you care and are involved. Along with that, I would try to go to clinic appointments with him if possible and he wants you to and be there when he is in the hospital (again if it is possible). You being a parnter in his care is important.

Really, the best piece of advice I can give you is to ask your BF specific questions about what he wants you to do and what can be helpful for him, etc. He may just dismiss it like you said and say 'You do enough', but I think that eventually they can start to talk about the things. Probably he hasn't really thought a lot about what he would ideally want you to do, etc. A lot of this is just going to come with time and figuring out what works and what doesn't. Each situation is different. Above all you just have to tell him (and show him) that you love him and are there no matter what. Being constant and a person he can depend on is key I think. It really does take some time to figure out things that work and don't--we are still figuring that out somewhat.

Anyway, I am getting long-winded and not sure I am even making sense, so I will stop! Please feel free to PM me or email me if you have any questions or want to chat, etc.

Take care,

Lisa
 
B

blondelawyer

New member
I am not from Michigan, so I don't have suggestions there, but do encourage him to find a doctor that he trusts, even if that means being followed by a clinic that he trusts...we have had lots of clinic issues, and they are not fun!
<br />
<br />I can better address your other concerns (maybe anyway), as I have been married to a guy with CF for 9 years. Learning about CF is a great thing to do. I have actually learned SO much from the site that my husband didn't even know. So, I educate him (and his doctors sometimes) about new treatments, research, etc. Obviously whether you do that or not will depend on your BF, but getting all of the information that you can for yourself is great and also shows your BF that you care and are involved. Along with that, I would try to go to clinic appointments with him if possible and he wants you to and be there when he is in the hospital (again if it is possible). You being a parnter in his care is important.
<br />
<br />Really, the best piece of advice I can give you is to ask your BF specific questions about what he wants you to do and what can be helpful for him, etc. He may just dismiss it like you said and say 'You do enough', but I think that eventually they can start to talk about the things. Probably he hasn't really thought a lot about what he would ideally want you to do, etc. A lot of this is just going to come with time and figuring out what works and what doesn't. Each situation is different. Above all you just have to tell him (and show him) that you love him and are there no matter what. Being constant and a person he can depend on is key I think. It really does take some time to figure out things that work and don't--we are still figuring that out somewhat.
<br />
<br />Anyway, I am getting long-winded and not sure I am even making sense, so I will stop! Please feel free to PM me or email me if you have any questions or want to chat, etc.
<br />
<br />Take care,
<br />
<br />Lisa
 
You must log in or register to reply here.
Top