Hi, we are in Canada and I would agree there is good and bad, as far as CF care, we have no complaints, they have been fantastic, her enzymes and vitamins are completely covered and so far that is all she has been on.
If I call anyone on her CF team, they get back to me usually the same day, we have never been left hanging.
I do sometimes find that you have to ask the right questions to find out the answer...cryptic I know, but as far as government funding etc, we have had to research on our own and some of the things we have found out we have just stumbled on the information by accident whilst looking for something else.
We did buy her the Respirtech inCourage Vest and that came out of our own pocket, it will be nice when the insurance companies start covering it the way they seem to do south of the border.
Our daughters Pediatrician has been excellent, although not completely 100% on CF he has always fitted her in when we needed to just check on symptoms before heading to the CF clinic.
As for our original doctor, useless...we kept taking her in to see him constantly for 14 months and then ended up yelling at him and demanding to have a specialist see our daughter immediately, he totally dismissed our concerns about her not having gained any weight and implied that I was over reacting, the specialist had her booked for a sweat test within weeks and she was diagnosed 24 hours later, needless to say I have not been back to the original doctor as I am still so angry at his arrogance that he knew better than we did. Funny thing is, according to our CF doctor, she has all the markers for a child with the disease, even he couldn't understand why they wouldn't listen to us.
CF care has been excellent, just shop around for a good family doctor and insist on having a pediatrician for your CF child.
Anymore questions just send me a note and I will get back to you.