Hi, I don't know anything about a clinic in Asterdam but I do know that the CF clinic in Maastricht is wonderful. We lived in Germany five years ago for three and a half years and my daughters went to the pediatric CF clinic in Maastricht, NL. It was wonderful, the hospital was great, Dr. Hendricks was great. One big difference we saw was in how they did their physiotherapie and how much emphasis was put on physical activity. But then again that is the Dutch way, lots of physical activity, riding bicycles, walking, etc. We were not able to get the enzymes my daughters were on while we were there, they had to change to a different one but one of my daughters didn't do well with it so we used a mail order pharmacy to get it. They used Pancrease MT16 and I think they only had the normal Pancrease. They stopped using percussion there, years ago. They liked the flutter and deep cycles of breathing which their physiotherapist, Mario, showed them how to do. As far as cost goes, I don't know too much about that because we were there with the military and our military insurance covered 100%. Although I know that they, like most other european countries have social medicine. We never had a problem getting appointments or getting a hospital bed. But my girls were younger then and didn't have many problems. We never used home IV, so I don't know if it's even an option. One thing we did love was that they would let you leave the hospital for short periods of time. There was a horse show going on once and they told us to go and enjoy the show for a little while, so we did. We did bring in our own Pulmozyme and enzymes while we were there, they said if we had it at home we could just bring it instead of paying for it again. We really liked it.
I hope something of this helps.
Liza
(mom of 2teen girls w/CF)
