Anyone take cipro full time?

E

Ender

New member
As I've been feeling crummy lately, i got some cipro for 2 weeks and i feel so much better already. I was wondering if anyone was on that full time? Kinda like tobi or colistan?

My docs want me to try tobi next week....we'll see how that goes. As I've just cultured pseudo, i wanna get something to keep it in check. I guess it's a good time though, cause they are comming out with the dry inhalers soon <img src="i/expressions/face-icon-small-smile.gif" border="0">

but all in all, i feel great lately. As i was off the oregano for a couple of weeks, ( i ran out, and took a while to get shipped) i felt overall crummy.

Anyways, i feel good these days. As my fev1 was 87 last doc appointment, and i feel better than when i was there, i wonder what the improvment will be?

I dunno, do you guys feel that when you are sick for an extended period of time you kinda feel down, like you have no hope and can't get out of the cycle. And then when you start feeling good again, it seems that you do have control over yourself and the world a bit more, and things start looking up?

I go in cycles i find.

it's wierd.

Kiel
 
E

Ender

New member
Amy, that was such a nice post...thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">

We sound the same, you and I. What you say rings pretty true for me. If i am like I am now, and not too bad off, i think if I am actually compliant with tobi and the saline, and the oregano etc....it will make a difference.

Perhaps i need something like tobi in my life...haha as silly as that sounds. I guess what you mean by following the directions is taking it everyday so that your bugs don't get a chance to adapt to it.

I think i need some stability in my life. I dunno...I find that I can be very...unstable at times (these last few months have been party central) and kinda self destructive in my ways. There's always this thing in the back of my head saying that i will be ok, that i can always get something new to bounce me back. I'm kinda unrealistic and hide from the true face that is cf.

It's wierd though. I mean....i know what i have, i know what I should be doing....but i have such a HARD time with it. It took me 22 years of my life to finally accept that i need a nebulizer, that i should try to find something to help me out. I think that as my health got a bit worse, I got the kick in the arse that i needed to be a bit more proactive.

It's still a fight with me. But I'm working on it. I think laura put it best saying that every mistake we make, everything we learn kinda builds us into the person we want to be.

On thursday i got really drunk, called in sick to my work (fifth time in 3 months, not good). My dad was furious. He was like....why? Why did you have to go out?
I honestly can't say. I knew that if i went out that i would probably miss work, and that it would cost me my job, but i still did it. After he said that, thinking back on it....it wasn't such a good idea. Why did i go out? what's with this self destructive behavior? I think a lot has to do with my cf...and just ignoring the consequences of my actions...

But I'm learning...I'm trying. That's the important thing. Yes we make mistakes, but it's what we do with them that make us who we are.

I think my attitude with cf has totally changed. The way i saw cf was how i would see it if someone else had it. I would look at them as sick...as someone who was kinda different. I didn't want to be that....I was normal.....bleh bleh bleh...

I realize that is total crap now. You are what you make yourself, regardless of what you have. If you act sick, treat cf as a disease....as a crutch, that is what it is going to be...that is who you will become. If you fight it...be open with it...look it straight in the eyes and be comfortable with it, than other people will see that, and be comfortable with it as well, and will respect you for your efforts.

I wish it didn't take me so long to figure this out...but at least i did. I'm sick of running. I'm stronger and smarter than that, as are all of you.

I think this site has been a great inspiration for me as well. You guys taught me how to fight, not to be embarrassed for having something i had no control of.

hahah thanks for making me think....

Kiel
 
L

lovingBenandCambree

New member
Kiel,

I really doubt that any doctor would put a patient on Cipro continuously due to the idea of resisitance. Unfortunatley I am resistant to Cipro. I think I can count on both hands how many times I have been on it and now I am resistant. Luckily, there are still great antibiotics that do wonders although IV. Oh well, I will take what I can get. Good luck with Tobi. I am also unable to take it anymore after having bronchospasm from it. Odd seeing as how I have been on it for about 8 or 9 years. Weird how it all works.

Emilee
 
E

Ender

New member
So why is it that they can keep people on zithromax and tobi long term but not cipro. Weird.
 
E

Ender

New member
So zithro is not used so much as an antibiotic but an anti inflammatory.

So i guess the main reason cipro isn't used long term isn't so much resistance but also otehr side affects. Tobi on the other hand can be used sustainably because it isnt absorbed in the lungs....

so here's the kicker. Why is it that you can become resistant to cipro after using it maybe 5-6 times, but it can take 5-10 years for you to become resistant to tobi. Is it the mechanism in which it disrupts the bacteria?

Kiel
 
F

Faust

New member
I became resistant to Tobi, and I was every other month like most. It will lengthen the time to become resistant, but eventually (and each person varies, some could go 5, some could go 10 years etc), if you continually introduce an antibiotic into your system, some bacteria that it acts on will indeed become resistant, it's just a matter of biochemistry.


I wonder why people would rely on an antibiotic for it's antiinflamatory purposes, when there are TONS of extremely strong natural non antibiotic antiinflamatory to use. Many herbs and essential oils and foods have strong antiinflamatory properties. I'd personally rather keep my bodies flora in tact and healthy with a non antibiotic means.
 
F

Faust

New member
I get all that fine, especially the MIC part, saw many examples of that when I did my research. My question about why use zithromax instead of natural strong non antibiotic antiinflamatories wasn't answered though.
 
M

MCPappy

New member
I am resistant to cirpro according to tests but it will still work
when i take it (which is a huge pain to get my doctor to give it to
me) but i am willing to try it for as long as it keeps me out of
the hospital.  <br>
As for Tobi I think it works pretty good.  I have used it
every other month since i was diagnosed six years ago and it has
helped me to get over colds and just feel better when I am not
feeling so hot.  The side effects are not that bad, but I do
tend to lose my voice really bad for the first week that I start
it.  This is more annoying then anything but sometimes its
really hard to cough hard with no voice so it makes coughing thing
out a little more of a challenge.  <br>
When I am on Tobi I use it while I am vesting after I use my
hypertonic saline and since i vest for 40 min two times a day it
dosent take up to much extra time for me.<br>
<br>
I Hope that Tobi works for you and you dont end up loosing your
voice =)<br>
<br>
 
T

thelizardqueen

New member
Just so everyone knows, Tobi should be done last - after physio so that you don't cough it out of your lungs. Because then that's a waste of time.
 
D

Diane

New member
Keep in mind that what you are resistant to now , you may not be resistant to forever. That can change. I've had a few times i was resistant to such and such an antibiotic and then a while later i was susceptable to it again. I've had times where i was pan resistant ( resistant to all) and then in the next culture or so i was susceptable to one or two of them again.
 
R

Ricky

New member
Ender,
Nobody should ever be on Cipro full time. You immune system will build up tollerences against the drug.
 
C

catboogie

New member
kiel,

first off, i am honored that you quoted me in your post...<img src="i/expressions/face-icon-small-smile.gif" border="0">

secondly, this post reminded me of something my doctor said at my last appointment: that if tobi comes in with WHAM concentrations and tobra goes all through you with so-so concentrations, then why aren't we on tobi when we have exacerbations and tobra for maintenance? of course this does not really consider the question of resistence. but given that eventually resistance is inevidable, it's interesting to think about.

thirdly, i also take cipro during exacerbations (the last time was a year and a half ago while i was also on ivs) even though it shows i am only "so-so" susceptable to it. guess it is that whole "cocktail" concept.

amy, thanks for all of your information. it is so helpful!

laura
 
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